Monday Meeting — Remembering Talia Joy Castellano

Talia Joy Castellano was beautiful.

An Honorary CoverGirl beautiful.

When she was 7 years old, Talia was diagnosed with Stage 4 Neuroblastoma. She died on July 16th, 2013. She was 13 years old.

On her Facebook profile, she wrote: wig

“I’m Talia, I’m 13 years old and I love makeup. “Make-up is My Wig” I like to say.
 You can prob see I’m bald- I have cancer. (neuroblastoma)& leukemia)
I don’t like wearing wigs so I wear makeup to feel good and pretty inside –
and I guess outside. LOL!” 

She absolutely loved make-up. Her You Tube channel, taliajoy18, included make-up tutorials about how to effectively use eyeliner and matte bronzer, the difference between make-up for days and make-up for evenings, the latest in lipstick shades, along with hundreds of other tips. It also included updates and personal videos about her cancer treatments.

Taliajoy18 had over 750,000 subscribers.

In August, 2012, Talia commented on her notoriety:

“You Tube, and all the support that I get from everyone
telling me that I’m inspiring and not to give up,
it really makes you stop and think about how many people there are
that love you…You’re not there alone.”

In September, 2012, Ellen DeGeneres invited Talia to appear on her TV show and revealed that CoverGirl had named Talia an Honorary CoverGirl.

cover girl

At Thanksgiving, her Facebook listed the “little things” Talia was grateful for – like “how stinking cute her pooch looks in her sweaters, the smell of her mom’s corn casserole, having campfires in her back yard with her family when the sun goes down, just being in the same room as her big sister, the little hugs of encouragement from a friend…”

Five days before she died, Talia posted 76 “Things I Wanna Do Before I Die.”

nydailynews

nydailynews

nydailynews

nydailynews

She actually got to a few.

"Help a newbie with cancer."

No. 60 – Help a newbie with cancer.

She asked her Facebook fans to head out to do some of the things for her, in case she didn’t get a chance to perform all 76 wishes. To this day, her fans are still keeping Talia’s dreams alive by completing her bucket list, then posting their shots on Facebook.

water balloon fight

No. 10: Water balloon fight.

No. 3: Dance in the rain.

No. 3: Dance in the rain.

In her final days, Talia was still her brave, sweet self. Her family shared this moment:

“Talia woke up again and asked for more to drink.
Her family and friends in the room started showing her the packages and fan mail again.
After a few minutes, Talia paused.
She looked around the room and said ‘I could cry right now…’
Her Mom got up real close to her and said ‘What’s wrong baby?.. Don’t cry..’
And Talia said ‘I’m just so grateful… I’m so grateful for you guys…’
Her family said that ‘This all melted our hearts.’”

In a video interview with The Truth 365, Talia shared this:

“In a hundred years, I would like to be remembered
as the bubbly girl who wanted to do something
about childhood cancer.”

On July 16th, her family posted this tweet: “It is with a heavy heart that we share with all of you that Talia has earned her wings at 11:22am,” which continued on Facebook:

“Please lift her beautiful soul, her beautiful light to heaven
and please send your love and prayers to her family
during this most difficult time.

God speed little one, may you be free from pain and suffering,
may your soul feel the light and love that you brought to so many of us
on this Earth during the short time you were her with us.
We will miss you more than you will ever know baby girl.”

Talia Joy Castellano was beautiful.

An Honorary CoverGirl beautiful.

But even more beautiful was her bubbly outlook, her courage and determination in the face of her cancer. Her wanting to reach out to others by educating them about make-up, childhood cancer, and being a teen-ager. Her continuing to offer hope and inspiration by jotting down and sharing her own bucket list of 76 dreams just 5 days before she died.

Her smile was huge, her heart even bigger. And her soul – her soul limitless. And eternal.

Talia Joy Castellano lives on in her “Angels for Talia” site on Facebook. In every person who carries out one of her 76 “Things I Wanna Do Before I Die” in her memory. In every person who reads about her, watches her You Tube videos, or smiles when they see her picture.

Talia’s No. 41 on her list is simple: Be loved.

One more to be crossed off your bucket list, Talia. Most certainly, you are, and always will be, loved.

Thank you for inspiring those of us left behind.

Your spirit shimmers and dances with light.

You are precious.

You are beautiful.

You are loved.

talia
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related post: My Last Days: Meet Zach Sobiech

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Thursday Re-View — “Dancing with Chopin”

Occasionally, I will post “Thursday Re-View,” a post from when I first started my blog that you may have missed. Enjoy!

___________________________________________________________________

Dancing with Chopin

Classical music? I was never a devoted fan, but one of my patients changed all that, enough so that whenever I hear Chopin, she is all around me.

Victoria was a middle-aged woman, petite, cultured, attractive – a lady in the truest sense of the word. She was devoted to her husband, her adult children, and Chopin. When I met her, she had suffered with ovarian cancer for 3 years (a feat in itself), and after exhausting traditional and alternative medicine treatment regimens, her only hope lay in getting included in a clinical trial, which was by no means certain.

She came to her first session wearing a designer suit, heels, a perfect manicure and a beautifully coiffed wig. She exuded poise and sophistication. Victoria chatted for a bit in a conversational manner, almost like she was at a social event. Suddenly, she stopped, then took a deep breath. Her words came out in a rush. “I never thought about dying.”

I sat, silent. She paused, struggled for breath and begged, “Don’t make me say that again.” She dug into her purse, found a small bottle and asked my permission to sip. The dark blue liquid, a derivative of the potent narcotic morphine, helped settle her labored breathing. She sat, her eyes filled with quiet fear. It seemed as if those words had been torn from her against her will, and now, she wanted nothing more than to take them back.

I assured her we did not have to “go there,” and we moved to safer ground.

At Victoria’s next visit, she chatted only briefly before the quiet fear returned. Her eyes welled up with tears, and as she dabbed them with a lace handkerchief, she apologized. I quietly remarked that whatever feelings she had were okay. She looked at me in disbelief, her voice quivering. “You mean I can cry?”

Pain pierced my heart and I could only nod. With that, Victoria covered her face with her hands, leaned into her lap and sobbed, her body rocking back and forth, wracked with grief. I wanted nothing more than to reach across the space between us and hold her, comfort her; the depth of her emotional pain was palpable. Instead, I visualized holding her as she cried. I could literally feel someone else’s arms (…wings?…) on top of mine, holding us in a Circle of Grace.

In this shared moment, we dwelt on sacred ground. No interventions other than love, compassion and presence were needed. It was enough to simply be with Victoria.

The following week, Victoria came into the room with renewed energy, a huge smile and a torrent of words. It was as if a dam had broken somewhere in the deepest part of her, and everything that had been buried, was now free. She announced that she was no longer afraid to die, and went on to describe a recent dream. In it, God introduced Victoria to her soul. She described it as a whirling, white mass of energy that spun round and round so quickly that it emitted shooting, golden sparks. Her eyes shone with excitement and her smile seemed even bigger. Victoria seemed almost childlike with the wonder of meeting her soul. “Best of all,” she confided, “my soul danced.”

My excitement mirrored hers. I recalled the woman of last week, who cried because with her tumors, she could no longer remember how to play Chopin on her piano. I had to ask. “Your soul; was it dancing to Chopin?”

“Yes,” she answered quietly, her eyes meeting mine, filled with a new-found peace. “Yes.”

I pictured her dancing effortlessly, joyous and cancer free, as the chords of Chopin echoed all around us.

fanpop.com

fanpop.com

Not quite 2 weeks later, when Victoria missed her appointment, I sought out her oncologist for an update. Victoria had taken a sudden turn for the worse, and was in the hospice unit on another floor. Almost as an afterthought, the doctor added that she only had a few days left. I went directly to her room, where her husband and adult children were keeping vigil around her bed. When I hesitated, her husband told Victoria that I was there, and she motioned me toward her side. She had lost more weight, and every movement seemed a huge effort.

I took her hand and looked at her, unable to speak for the tears. Her eyes met mine with a wisdom and peace that suited her, a mantle she wore comfortably and with her usual elegance.

She gently pulled me closer and whispered, “I love you.”

I just shook my head, still unable to say a word. With all the strength I could muster, I squeezed her hand. “Chopin – you will be dancing to Chopin…”

Victoria smiled as she nodded her assent, then closed her eyes. Even this small exchange left her spent.

I leaned in and kissed her cheek. “Thank you for the gift of you, Victoria. Our time together has been a privilege, and I keep you in my heart,” I said quietly. Having said my good-bye, I turned and left.

Be well, Victoria, and move on with my gratitude, blessings and love. Your soul graced this earth with beauty and brightness. You will be missed. You will be remembered.

Dance with abandon.

And thank you for introducing me to Chopin…

Sacred ground. So many moments in our lives, unaware, we dwell on sacred ground.

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Thursday Re-View — “Remembrance” (1989)

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Remembrance

February 29, 1988. An oddity, Leap Year. It comes every four years, then departs without a trace. Not for me. The pain of that day is seared in my memory. That’s the day that cancer took my Mom, when she was 59 years old. That’s the day that I lost a part of me forever.

The obituary page…so impersonal. Facts: names, dates, places, times. Nothing, yet supposedly everything. How can Mom be a statistic in black and white to them, her whole life listed in capsule form? Yet they know nothing of her, nothing at all.

Mom. Quitting school at 16 in order to bring home money for the family. Falling in love with a sailor in his dress blues, marrying him at 18, and working at 41 years of life together. Two daughters, a business, long days. Always saving for a rainy day, postponing trips “until we are retired.”

Memories. A cool hand on my forehead whenever I had a fever (it comes full circle, Mom; I did the same for you at the end). My favorite meal. Unending words of encouragement and support. Holding my hand tightly whenever I crossed the road on my way to school. Sitting together on a swing under the tree, having morning coffee together. (I didn’t even like coffee, but I liked the time with you.) Going shopping and having lunch together. A blinding smile that lit up the Academy of Music: “My daughter, the Doctor.” Waking up in the hospital after all four of my surgeries, and seeing you at the bottom of the bed, waiting. Trips to Europe, and cruises with my own cabin. Christmas Eve, filled with Italian dinners and hours of opening presents.

Alex. The child against the odds, as I had been for you. My Alex, your third grandson, who you greeted every morning for 16 months as if he were a king. You showered him with the same love you had given me. Now, he asks who you are in family pictures. His beloved Mimi. He was barely 2 ½ when you left. How can I be a Mother to him, as you were to me, when you’re not here to guide me?

June, 1987. Cancer. Dr. Friedman’s office: lumpectomy or mastectomy? Point-blank: “Theresa, what would you do?” As if any of us can outsmart cancer. But I know better. I know how poor a woman’s chances really are. 1-800-4-CANCER. Very supportive, very optimistic, very wrong.

Chemotherapy. Six long months of pills and injections; you were node-positive. The cancer cells will die (so will you). Doesn’t chemotherapy kill the healthy cells, too? You told me losing your hair hurt more than the nausea and vomiting, and I believed you. The wig was rejected, a turban grudgingly accepted.

Change. You’re different, Mom. You’re giving up. You talk less, you care less, you take longer to heal. You’re too sick to tell jokes or have a beer or yell at Dad or give advice. I don’t know you, and I’m impatient because I want the real you back. I’m selfish, and I feel guilty for thinking you should be better.

Super Bowl Sunday, January, 1988. I am depressed. You’re too sick to come to the annual party (you started this tradition, Mom; you have to be here!). The doorbell rings, and you’re at my front door in a long, navy blue bathrobe, turban on your head, bedroom slippers, and your stomach swollen like when I was 9 months pregnant. But you’re here, and my smile lights up the foyer (you always said I was pretty when I smiled). Later, I realized that my house was the last place you would visit before your final trip to the hospital.

February 1, 1988. The first day of the last month of your life. First, removal of several liters of fluid from your stomach, then surgery to implant a porta-cath, followed shortly by exploratory surgery. “Did it turn out all right, Theresa?” “Yes, Mom, it’s okay.” Really? No. Half of your liver is gone, the cancer is strangling your intestines, spreading throughout your body cavity. Six months of chemotherapy. For what? To make the time you had left more miserable?

Roller coaster. The doctors have elected me as the family spokesperson, the person to hear the news and disseminate it to the rest. I cringe every time I turn the corner in the hallway of the hospital, and hear the latest test results. Where there’s life, there’s hope, daughter Theresa says. Mom’s spirit will beat this. But Dr. Theresa knows there’s no chance of recovery. A constant battle; which person do I believe?

Warren Hospital. Your window on the 2nd floor…it’s easy to find from outside. It’s the one with hundreds of cards taped to the window and walls. Doris, the nurse’s aide who helps you sip iced tea, says she’s never seen this many cards for a patient. It’s the room with 29 days of non-stop flower arrangements, brightening those dreary February days, helping to mask the ever-present smell of cancer.

Flowers

Hospital furniture. Adjustable bed and wheelchair. IV tubes, blood transfusions, catheter, oxygen, stomach tube, intestinal feeding tube. A water mattress to cool your body temperature, a fan blowing on your elevated legs (blood clots, remember?). A washcloth on your forehead, Depend undergarments (full circle), hospital robes, blood pressure cuffs, electronic IVs. Beep, beep, beeping…STOP! I want to rip them all out, this is barbaric. I want to end your suffering (or is it mine?) with an overdose of morphine. I ask Dr. Friedman for extra morphine. “Theresa, you don’t know what you’re saying.” Or do you?

Doctor’s words of wisdom: your mother will not leave the hospital…I almost cried when I opened her up and saw the extent of her cancer…if only we could get back some of her spirit, she might have a fighting chance…it would be merciful if a blood clot loosened; it would be quick…should we write a “Do Not Resuscitate” order?…you may have to make the decision to stop feeding her (starve her???)…give her as much morphine as she wants…there are good ways and bad ways to die, and your mother has shown more courage and dignity in her death than I’ve ever seen…I’m sorry, I wish there was more that I could do.

You knew, didn’t you, Mom? You told the nurses you didn’t want this to take too long, that your family was suffering too much. At your request, a priest administered Last Rites…we had no idea. “Are you mad at me, Theresa, for refusing more chemo?” “No, Mom, (choke) I’d do the same thing.” You told us where all of your jewelry was, and what clothes to have Dad wear at your viewing and funeral. You wanted to be in a pink or blue nightgown. Pink? I never saw you in pink. We got you blue, Mom, and the saleslady at Sigal’s offered her deepest sympathies.

Saturday, February 27th. It snowed, so Steve drove Alex and me. You were delirious, but you were coherent enough to want to see Alex. Yes. “Dee dee (your pet name for him).” Alex was afraid of you and the tubes, but your frightened look makes me keep him there awhile longer. You fought the morphine to stay awake, and wanted us all by the bed. Peach schnapps? Okay, Mom, we’ll make sure everyone is offered it at the house. You waited until we left to close your eyes, taking one last long look at your family. You slept peacefully, and Dad didn’t even try to wake you to say good-bye.

Sunday, February 28th. The hospital called us…were we coming? Of course; Dad hadn’t missed a day. The hospital bed was lowered (don’t the blood clots matter any more?) and someone had placed your rosary in your hand. Your breathing was ragged, the machines pumping and beeping, the flowers the only bright spot in the room. June, your favorite nurse, cried in my arms in the hall. She told me that this was how it ended. This is how it ends? All those years of joy and sorrow, hopes and dreams…they just stop? (Is this really happening? I’ll wake up from this nightmare soon, and everything will be all right.) They said hearing is the last sense to go, so I held your lavender rose close and said good-bye, thanking you, loving you, telling you it was all right for you to go. The nurses came at the end of their shift to say good-bye, forming a circle of love around your bed. You continued to touch people, Mom, even at your worst. If only they had known you at your best!

Monday morning, 3am. The phone call. Good. It is done. No more suffering. So many details and decisions, so many people with so many kind words and so much food. Steve makes the trip to the hospital to take down all of the cards. Your room was empty when he got there. The bed was stripped of you, as was my life.tear

Tuesday, the viewing. Wednesday, the funeral. Numbness. Would you believe we’re trying to comfort others in their grief? A woman kneeled with her head in my lap, her tears soaking my dress. (Or were they my tears? No matter.) It’s not really you in that casket, Mom. You’re in a far better place. We got you slippers because your feet were always cold, and I put on your glasses so you could see. The funeral director is amazed at the number of floral tributes; they circled the room many times. Soon, they would grace the rooms of those back in the hospital, and the nurse’s station as well. By Wednesday evening, all is over. My new life without you has just begun.

March, 1989. A year has passed one day at a time. My frequent bouts of grief have given way to less frequent bouts, but when they come, they are just as deep and painful. The thing I miss most is talking to you every day at lunch time (how long will it be before I no longer catch myself reaching for the phone to tell you something important?). This is all so unbelievable; you’re just away on vacation and you’ll be back again, soon. I still get angry when I see older couples holding hands, and I put up a Christmas tree even though I didn’t have the heart for it. I did it for Alex, and for you. I am his mother, as you were mine. That’s what mothers do. I couldn’t go into a Hallmark store at Mother’s Day; maybe someday I’ll be able to pass the cards without crying.

I miss you, Mom, as a mother, and as a friend. Everyone tells me that I’ve been elected to take your place. Silly people…no one can do that. But your memory lives on in my heart, and those parts of you I passed on to Alex will live on in his children, his children’s children, and beyond. Every time I make seafood on Christmas Eve, read a book you would have enjoyed, give Alex a hug, make potato pancakes for Dad, help someone in need, keep watch over the family, say a prayer of thanksgiving for you…at each of these times, I will celebrate the memory of your being.

I miss you, Mom. But if I look around, you are everywhere, in all things. And most of all, in me. You will be with me always, and I know from a deep, abiding faith that someday, we will be together again. Until then, I will remember you, and keep you alive in my heart. I will live as you would have wanted me to, and I will do my best to remember to treat people with dignity, honor, and truth, as you taught me.

Thank you, Mom, for my life.

Thank You, God, for my mother.

May You grant her everlasting peace.

cala liliesl

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Thursday Re-View — “Dancing with Chopin”

Occasionally, I will post “Thursday Re-View,” a post from when I first started my blog that you may have missed. Enjoy!

___________________________________________________________________

Dancing with Chopin

Classical music? I was never a devoted fan, but one of my patients changed all that, enough so that whenever I hear Chopin, she is all around me.

Victoria was a middle-aged woman, petite, cultured, attractive – a lady in the truest sense of the word. She was devoted to her husband, her adult children, and Chopin. When I met her, she had suffered with ovarian cancer for 3 years (a feat in itself), and after exhausting traditional and alternative medicine treatment regimens, her only hope lay in getting included in a clinical trial, which was by no means certain.

She came to her first session wearing a designer suit, heels, a perfect manicure and a beautifully coiffed wig. She exuded poise and sophistication. Victoria chatted for a bit in a conversational manner, almost like she was at a social event. Suddenly, she stopped, then took a deep breath. Her words came out in a rush. “I never thought about dying.”

I sat, silent. She paused, struggled for breath and begged, “Don’t make me say that again.” She dug into her purse, found a small bottle and asked my permission to sip. The dark blue liquid, a derivative of the potent narcotic morphine, helped settle her labored breathing. She sat, her eyes filled with quiet fear. It seemed as if those words had been torn from her against her will, and now, she wanted nothing more than to take them back.

I assured her we did not have to “go there,” and we moved to safer ground.

At Victoria’s next visit, she chatted only briefly before the quiet fear returned. Her eyes welled up with tears, and as she dabbed them with a lace handkerchief, she apologized. I quietly remarked that whatever feelings she had were okay. She looked at me in disbelief, her voice quivering. “You mean I can cry?”

Pain pierced my heart and I could only nod. With that, Victoria covered her face with her hands, leaned into her lap and sobbed, her body rocking back and forth, wracked with grief. I wanted nothing more than to reach across the space between us and hold her, comfort her; the depth of her emotional pain was palpable. Instead, I visualized holding her as she cried. I could literally feel someone else’s arms (…wings?…) on top of mine, holding us in a Circle of Grace.

In this shared moment, we dwelt on sacred ground. No interventions other than love, compassion and presence were needed. It was enough to simply be with Victoria.

The following week, Victoria came into the room with renewed energy, a huge smile and a torrent of words. It was as if a dam had broken somewhere in the deepest part of her, and everything that had been buried, was now free. She announced that she was no longer afraid to die, and went on to describe a recent dream. In it, God introduced Victoria to her soul. She described it as a whirling, white mass of energy that spun round and round so quickly that it emitted shooting, golden sparks. Her eyes shone with excitement and her smile seemed even bigger. Victoria seemed almost childlike with the wonder of meeting her soul. “Best of all,” she confided, “my soul danced.”

My excitement mirrored hers. I recalled the woman of last week, who cried because with her tumors, she could no longer remember how to play Chopin on her piano. I had to ask. “Your soul; was it dancing to Chopin?”

“Yes,” she answered quietly, her eyes meeting mine, filled with a new-found peace. “Yes.”

I pictured her dancing effortlessly, joyous and cancer free, as the chords of Chopin echoed all around us.

fanpop.com

fanpop.com

Not quite 2 weeks later, when Victoria missed her appointment, I sought out her oncologist for an update. Victoria had taken a sudden turn for the worse, and was in the hospice unit on another floor. Almost as an afterthought, the doctor added that she only had a few days left. I went directly to her room, where her husband and adult children were keeping vigil around her bed. When I hesitated, her husband told Victoria that I was there, and she motioned me toward her side. She had lost more weight, and every movement seemed a huge effort.

I took her hand and looked at her, unable to speak for the tears. Her eyes met mine with a wisdom and peace that suited her, a mantle she wore comfortably and with her usual elegance.

She gently pulled me closer and whispered, “I love you.”

I just shook my head, still unable to say a word. With all the strength I could muster, I squeezed her hand. “Chopin – you will be dancing to Chopin…”

Victoria smiled as she nodded her assent, then closed her eyes. Even this small exchange left her spent.

I leaned in and kissed her cheek. “Thank you for the gift of you, Victoria. Our time together has been a privilege, and I keep you in my heart,” I said quietly. Having said my good-bye, I turned and left.

Be well, Victoria, and move on with my gratitude, blessings and love. Your soul graced this earth with beauty and brightness. You will be missed. You will be remembered.

Dance with abandon.

And thank you for introducing me to Chopin…

Sacred ground. So many moments in our lives, unaware, we dwell on sacred ground.

_____________________________________________________________________________________

Remembrance (1989)

img231

Remembrance

February 29, 1988. An oddity, Leap Year. It comes every four years, then departs without a trace. Not for me. The pain of that day is seared in my memory. That’s the day that cancer took my Mom, when she was 59 years old. That’s the day that I lost a part of me forever.

The obituary page…so impersonal. Facts: names, dates, places, times. Nothing, yet supposedly everything. How can Mom be a statistic in black and white to them, her whole life listed in capsule form? Yet they know nothing of her, nothing at all.

Mom. Quitting school at 16 in order to bring home money for the family. Falling in love with a sailor in his dress blues, marrying him at 18, and working at 41 years of life together. Two daughters, a business, long days. Always saving for a rainy day, postponing trips “until we are retired.”

Memories. A cool hand on my forehead whenever I had a fever (it comes full circle, Mom; I did the same for you at the end). My favorite meal. Unending words of encouragement and support. Holding my hand tightly whenever I crossed the road on my way to school. Sitting together on a swing under the tree, having morning coffee together. (I didn’t even like coffee, but I liked the time with you.) Going shopping and having lunch together. A blinding smile that lit up the Academy of Music: “My daughter, the Doctor.” Waking up in the hospital after all four of my surgeries, and seeing you at the bottom of the bed, waiting. Trips to Europe, and cruises with my own cabin. Christmas Eve, filled with Italian dinners and hours of opening presents.

Alex. The child against the odds, as I had been for you. My Alex, your third grandson, who you greeted every morning for 16 months as if he were a king. You showered him with the same love you had given me. Now, he asks who you are in family pictures. His beloved Mimi. He was barely 2 ½ when you left. How can I be a Mother to him, as you were to me, when you’re not here to guide me?

June, 1987. Cancer. Dr. Friedman’s office: lumpectomy or mastectomy? Point-blank: “Theresa, what would you do?” As if any of us can outsmart cancer. But I know better. I know how poor a woman’s chances really are. 1-800-4-CANCER. Very supportive, very optimistic, very wrong.

Chemotherapy. Six long months of pills and injections; you were node-positive. The cancer cells will die (so will you). Doesn’t chemotherapy kill the healthy cells, too? You told me losing your hair hurt more than the nausea and vomiting, and I believed you. The wig was rejected, a turban grudgingly accepted.

Change. You’re different, Mom. You’re giving up. You talk less, you care less, you take longer to heal. You’re too sick to tell jokes or have a beer or yell at Dad or give advice. I don’t know you, and I’m impatient because I want the real you back. I’m selfish, and I feel guilty for thinking you should be better.

Super Bowl Sunday, January, 1988. I am depressed. You’re too sick to come to the annual party (you started this tradition, Mom; you have to be here!). The doorbell rings, and you’re at my front door in a long, navy blue bathrobe, turban on your head, bedroom slippers, and your stomach swollen like when I was 9 months pregnant. But you’re here, and my smile lights up the foyer (you always said I was pretty when I smiled). Later, I realized that my house was the last place you would visit before your final trip to the hospital.

February 1, 1988. The first day of the last month of your life. First, removal of several liters of fluid from your stomach, then surgery to implant a porta-cath, followed shortly by exploratory surgery. “Did it turn out all right, Theresa?” “Yes, Mom, it’s okay.” Really? No. Half of your liver is gone, the cancer is strangling your intestines, spreading throughout your body cavity. Six months of chemotherapy. For what? To make the time you had left more miserable?

Roller coaster. The doctors have elected me as the family spokesperson, the person to hear the news and disseminate it to the rest. I cringe every time I turn the corner in the hallway of the hospital, and hear the latest test results. Where there’s life, there’s hope, daughter Theresa says. Mom’s spirit will beat this. But Dr. Theresa knows there’s no chance of recovery. A constant battle; which person do I believe?

Warren Hospital. Your window on the 2nd floor…it’s easy to find from outside. It’s the one with hundreds of cards taped to the window and walls. Doris, the nurse’s aide who helps you sip iced tea, says she’s never seen this many cards for a patient. It’s the room with 29 days of non-stop flower arrangements, brightening those dreary February days, helping to mask the ever-present smell of cancer.

Flowers

Hospital furniture. Adjustable bed and wheelchair. IV tubes, blood transfusions, catheter, oxygen, stomach tube, intestinal feeding tube. A water mattress to cool your body temperature, a fan blowing on your elevated legs (blood clots, remember?). A washcloth on your forehead, Depend undergarments (full circle), hospital robes, blood pressure cuffs, electronic IVs. Beep, beep, beeping…STOP! I want to rip them all out, this is barbaric. I want to end your suffering (or is it mine?) with an overdose of morphine. I ask Dr. Friedman for extra morphine. “Theresa, you don’t know what you’re saying.” Or do you?

Doctor’s words of wisdom: your mother will not leave the hospital…I almost cried when I opened her up and saw the extent of her cancer…if only we could get back some of her spirit, she might have a fighting chance…it would be merciful if a blood clot loosened; it would be quick…should we write a “Do Not Resuscitate” order?…you may have to make the decision to stop feeding her (starve her???)…give her as much morphine as she wants…there are good ways and bad ways to die, and your mother has shown more courage and dignity in her death than I’ve ever seen…I’m sorry, I wish there was more that I could do.

You knew, didn’t you, Mom? You told the nurses you didn’t want this to take too long, that your family was suffering too much. At your request, a priest administered Last Rites…we had no idea. “Are you mad at me, Theresa, for refusing more chemo?” “No, Mom, (choke) I’d do the same thing.” You told us where all of your jewelry was, and what clothes to have Dad wear at your viewing and funeral. You wanted to be in a pink or blue nightgown. Pink? I never saw you in pink. We got you blue, Mom, and the saleslady at Sigal’s offered her deepest sympathies.

Saturday, February 27th. It snowed, so Steve drove Alex and me. You were delirious, but you were coherent enough to want to see Alex. Yes. “Dee dee (your pet name for him).” Alex was afraid of you and the tubes, but your frightened look makes me keep him there awhile longer. You fought the morphine to stay awake, and wanted us all by the bed. Peach schnapps? Okay, Mom, we’ll make sure everyone is offered it at the house. You waited until we left to close your eyes, taking one last long look at your family. You slept peacefully, and Dad didn’t even try to wake you to say good-bye.

Sunday, February 28th. The hospital called us…were we coming? Of course; Dad hadn’t missed a day. The hospital bed was lowered (don’t the blood clots matter any more?) and someone had placed your rosary in your hand. Your breathing was ragged, the machines pumping and beeping, the flowers the only bright spot in the room. June, your favorite nurse, cried in my arms in the hall. She told me that this was how it ended. This is how it ends? All those years of joy and sorrow, hopes and dreams…they just stop? (Is this really happening? I’ll wake up from this nightmare soon, and everything will be all right.) They said hearing is the last sense to go, so I held your lavender rose close and said good-bye, thanking you, loving you, telling you it was all right for you to go. The nurses came at the end of their shift to say good-bye, forming a circle of love around your bed. You continued to touch people, Mom, even at your worst. If only they had known you at your best!

Monday morning, 3am. The phone call. Good. It is done. No more suffering. So many details and decisions, so many people with so many kind words and so much food. Steve makes the trip to the hospital to take down all of the cards. Your room was empty when he got there. The bed was stripped of you, as was my life.tear

Tuesday, the viewing. Wednesday, the funeral. Numbness. Would you believe we’re trying to comfort others in their grief? A woman kneeled with her head in my lap, her tears soaking my dress. (Or were they my tears? No matter.) It’s not really you in that casket, Mom. You’re in a far better place. We got you slippers because your feet were always cold, and I put on your glasses so you could see. The funeral director is amazed at the number of floral tributes; they circled the room many times. Soon, they would grace the rooms of those back in the hospital, and the nurse’s station as well. By Wednesday evening, all is over. My new life without you has just begun.

March, 1989. A year has passed one day at a time. My frequent bouts of grief have given way to less frequent bouts, but when they come, they are just as deep and painful. The thing I miss most is talking to you every day at lunch time (how long will it be before I no longer catch myself reaching for the phone to tell you something important?). This is all so unbelievable; you’re just away on vacation and you’ll be back again, soon. I still get angry when I see older couples holding hands, and I put up a Christmas tree even though I didn’t have the heart for it. I did it for Alex, and for you. I am his mother, as you were mine. That’s what mothers do. I couldn’t go into a Hallmark store at Mother’s Day; maybe someday I’ll be able to pass the cards without crying.

I miss you, Mom, as a mother, and as a friend. Everyone tells me that I’ve been elected to take your place. Silly people…no one can do that. But your memory lives on in my heart, and those parts of you I passed on to Alex will live on in his children, his children’s children, and beyond. Every time I make seafood on Christmas Eve, read a book you would have enjoyed, give Alex a hug, make potato pancakes for Dad, help someone in need, keep watch over the family, say a prayer of thanksgiving for you…at each of these times, I will celebrate the memory of your being.

I miss you, Mom. But if I look around, you are everywhere, in all things. And most of all, in me. You will be with me always, and I know from a deep, abiding faith that someday, we will be together again. Until then, I will remember you, and keep you alive in my heart. I will live as you would have wanted me to, and I will do my best to remember to treat people with dignity, honor, and truth, as you taught me.

Thank you, Mom, for my life.

Thank You, God, for my mother.

May You grant her everlasting peace.

cala liliesl

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Dancing with Chopin

Classical music? I was never a devoted fan, but one of my patients changed all that, enough so that whenever I hear Chopin, she is all around me.

Victoria was a middle-aged woman, petite, cultured, attractive – a lady in the truest sense of the word. She was devoted to her husband, her adult children, and Chopin. When I met her, she had suffered with ovarian cancer for 3 years (a feat in itself), and after exhausting traditional and alternative medicine treatment regimens, her only hope lay in getting included in a clinical trial, which was by no means certain.

She came to her first session wearing a designer suit, heels, a perfect manicure and a beautifully coiffed wig. She exuded poise and sophistication. Victoria chatted for a bit in a conversational manner, almost like she was at a social event. Suddenly, she stopped, then took a deep breath. Her words came out in a rush. “I never thought about dying.”

I sat, silent. She paused, struggled for breath and begged, “Don’t make me say that again.” She dug into her purse, found a small bottle and asked my permission to sip. The dark blue liquid, a derivative of the potent narcotic morphine, helped settle her labored breathing. She sat, her eyes filled with quiet fear. It seemed as if those words had been torn from her against her will, and now, she wanted nothing more than to take them back.

I assured her we did not have to “go there,” and we moved to safer ground.

At Victoria’s next visit, she chatted only briefly before the quiet fear returned. Her eyes welled up with tears, and as she dabbed them with a lace handkerchief, she apologized. I quietly remarked that whatever feelings she had were okay. She looked at me in disbelief, her voice quivering. “You mean I can cry?”

Pain pierced my heart and I could only nod. With that, Victoria covered her face with her hands, leaned into her lap and sobbed, her body rocking back and forth, wracked with grief. I wanted nothing more than to reach across the space between us and hold her, comfort her; the depth of her emotional pain was palpable. Instead, I visualized holding her as she cried. I could literally feel someone else’s arms (…wings?…) on top of mine, holding us in a Circle of Grace.

In this shared moment, we dwelt on sacred ground. No interventions other than love, compassion and presence were needed. It was enough to simply be with Victoria.

The following week, Victoria came into the room with renewed energy, a huge smile and a torrent of words. It was as if a dam had broken somewhere in the deepest part of her, and everything that had been buried, was now free. She announced that she was no longer afraid to die, and went on to describe a recent dream. In it, God introduced Victoria to her soul. She described it as a whirling, white mass of energy that spun round and round so quickly that it emitted shooting, golden sparks. Her eyes shone with excitement and her smile seemed even bigger. Victoria seemed almost childlike with the wonder of meeting her soul. “Best of all,” she confided, “my soul danced.”

My excitement mirrored hers. I recalled the woman of last week, who cried because with her tumors, she could no longer remember how to play Chopin on her piano. I had to ask. “Your soul; was it dancing to Chopin?”

“Yes,” she answered quietly, her eyes meeting mine, filled with a new-found peace. “Yes.”

I pictured her dancing effortlessly, joyous and cancer free, as the chords of Chopin echoed all around us.

Not quite 2 weeks later, when Victoria missed her appointment, I sought out her oncologist for an update. Victoria had taken a sudden turn for the worse, and was in the hospice unit on another floor. Almost as an afterthought, the doctor added that she only had a few days left. I went directly to her room, where her husband and adult children were keeping vigil around her bed. When I hesitated, her husband told Victoria that I was there, and she motioned me toward her side. She had lost more weight, and every movement seemed a huge effort.

I took her hand and looked at her, unable to speak for the tears. Her eyes met mine with a wisdom and peace that suited her, a mantle she wore comfortably and with her usual elegance.

She gently pulled me closer and whispered, “I love you.”

I just shook my head, still unable to say a word. With all the strength I could muster, I squeezed her hand. “Chopin – you will be dancing to Chopin…”

Victoria smiled as she nodded her assent, then closed her eyes. Even this small exchange left her spent.

I leaned in and kissed her cheek. “Thank you for the gift of you, Victoria. Our time together has been a privilege, and I keep you in my heart,” I said quietly. Having said my good-bye, I turned and left.

Be well, Victoria, and move on with my gratitude, blessings and love. Your soul graced this earth with beauty and brightness. You will be missed. You will be remembered.

Dance with abandon.

And thank you for introducing me to Chopin…

Sacred ground. So many moments in our lives, unaware, we dwell on sacred ground.