Thursday Re-View — I Just Want to Talk With Them Again

I just want to talk with them again.

Mom and Dad. Just one more time to sit over a cup of coffee and catch up.

Mom died 26 years ago, Dad died 2 years ago, but sometimes the desire to talk with them tears my heart into pieces. Such a little thing – to talk together – is such a big thing.

If given the chance, what would I do?

First I’d tell them I loved them, how much I missed them, how much I wanted to thank them. And I’d stand wrapped in their arms until the weight of the world drifted away and all I could feel was their love. Protected, where no one or no thing could touch me without their permission. Yet when I picture the hug in the recesses of my 60-year old memory, I am still a little girl in a grown up world.

I just want to talk with them again.

To tell them about Alex’s wedding a week ago. How lovely it was, intimate, with only 30 people. The groom was handsome, the bride beautiful. It rained, but it rained on their first date and when Alex proposed, so rain seems to be a blessing of theirs. And how I didn’t cry until I saw the empty chair in the front row draped in white with their picture on it, honoring Mimi and Poppy who weren’t there. At least not physically…

To share pictures of their three grandsons, who are now all married and successfully giving back to society. To see their five great-grandchildren who are all healthy and bright and strong.

To describe yet another health scare last month, when the ER docs thought I had a second mini-stroke when I couldn’t remember whether or not Alex had gotten married yet. My brain was a blank slate, and of all the things that have ever happened with my health, this is the only one that scared me. And it reminded me that even though I have gone kicking and screaming into this forced retirement of sorts, perhaps I am not meant to be working full time. Perhaps my life, as it is, is enough.

To tell them about my blogging adventure, where 1,100 people have actually chosen to get an e-mail every time I post something. Where my love of writing, and desire to provide encouragement and inspiration meet in a ministry all its own. Where they can read about people and places and things that have touched me and helped me to grow in compassion and love.

To describe what it felt like to volunteer for the Red Cross as a mental health provider at the viewing and funeral for a Pennsylvania State Trooper who was ambushed outside his barracks. To honor him and his wife and two little boys by being present for those who mourned. To serve the thousands of State Troopers who came from as far away as Alaska, California, Texas, Minnesota, Iowa, North and South Carolina, Virginia, Maryland, Ohio, Massachusetts, New Hampshire, Rhode Island, New York, New Jersey, just to name a few. To describe what it felt like to see the best of humanity come together following the actions of the worst of humanity, and to know that the light will always overtake the darkness.

I just want to talk with them again.

But how long would I need for 26 years of updates for Mom, and 2 years of events for Dad? And if I honestly believe that our loved ones watch over us after they die – and I do – then I don’t really need to talk to them, to update them on their family, since they already know all that I would tell them.

Maybe I just want to hear their voices one more time, hold their hands in mine, feel their arms around me. To be swallowed up by their love, their protection, their wisdom. To know that regardless of what happens, everything will be alright.

Everything will be alright.

Dear God:
I just want to talk with Mom and Dad again.
Can you do that for me – please?
Theresa

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Thursday Re-View — Echoes of Darkness Sheathed in the Light

In Memoriam – Mom
April 25, 1928 – February 29, 1988

[written March 1, 2009]

I thought it had passed.

Just yesterday, I remarked to my sister – “This is the first February in 21 years that hasn’t been brutal.”

Then this morning, just the mention of the phone call in the early morning darkness, when Dad told me you had died and I said, “Good” – (Good for who – me? You? The echo of guilt lingers still…) – brings back the grief like a wave crashing into rock, and I am pulled under in an instant, drowning.

The well of grief swallows me, the darkness returns, and I ache with loss – the emptiness – the missing of you – the longing for your closeness – (Me? The one who hated hugs? The one who now hugs all those in need, desperate for their/my/your touch?).

My right hand trembles, my teeth chatter, and I rock…I ache…I mourn.

My tears flood the emptiness with despair, until the well is filled to overflowing, and just when there can be no more left, the flood gates open with a rush of white-hot tears – searing, scalding, scarring – as they traverse the channels carved in my soul.

I escape then, but to where? A place of quiet, of gray, of nothing, where no one or no thing exists…where no one or no thing can hurt.

I am numb.

I cease to feel, to breathe, to mourn…quiet, waiting, collecting, remembering, forgetting. I want to stay in this nothing, where the past and present blend, simply waiting. I could spend eternity here, neither warm nor cold, neither black nor white – nothing.

But then a soft white light burns through the fog – slowly, steadily, purposefully – coming toward me. And when I turn from it, it envelops me with warmth, an embrace, a distant memory, a familiar voice, a whisper. It seeks, it flows, it permeates, it dissolves, it heals – slowly, completely. It restores breath into my lungs, it touches my hand and the trembling ceases.

The crying stops and I return. Depleted, yet complete, filled with the sense that love hurts and heals, devours and regenerates, erases then re-creates, takes away only to be made whole.

If I love, I risk.

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My losses seem legion, but my blessings lift me to a place I would not have seen had I not been buried. The tears that drowned me in their ending are transformed into the healing waters of a baptism, a beginning, a grace.

I hesitate – these wings have weight – do I want what they hold? A familiar stirring inside me – a blossoming – a peace – a knowing that this is right and good. The weight will be lifted when I surrender.

And I hear the whispered promise – “I will be with you, always.” – and I feel Your embrace lift me up, then release me. I soar back into life, toward the light and Your promise, and I know I am who I am because of You, because of Your love.

Of whom do I speak? Of my Mother? Of God? Of His Mother? It matters not; only that I return. Only that I remember Your voice as I reach out to those in need. That I am present in their pain – that I quiet their tears – that I wait in their darkness – that I am their light and their hope as You were/are/will always be to me.

Lift me up, so that I might lift them.
Love me, so that I might love them.
Give me hope, so that I might bring hope to them.
Guide me, so that I might guide them.
Give me Your words, so that I might speak them.
Give me Your hearing, so that I might listen to them.
Heal me, so that I might heal them.

Remember me, as I remember You.

I am who I am, because of You.

_______________________________________________________

Related Post: Remembrance

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Thursday Re-View — Of Storms Within

S shuffled into my office at the Cancer Center carrying a worn Bible in her left hand. A middle-aged large-boned woman who had never married, she had short gray hair, men’s jeans and a plaid flannel shirt. With her tired eyes and slumped shoulders, she looked like she hadn’t smiled in years, at least.

S referred herself for issues regarding her role as primary caregiver to a brother who was dying from cancer. For the past 30 years, she had taken care of five different relatives through their cancer illness and death: her mother, brother, sister, aunt, and grandmother.

Thirty years ago, on her deathbed, S’s mother grabbed the collar of S’s blouse and made her daughter swear to “take care of” her brothers and sisters. S still felt her mother’s grip on her throat and on her life.

S fulfilled her promise to the point that she even nursed her aunt through her cancer: the same aunt who, whenever there was a thunderstorm when S was a little girl, made her niece get under the covers of her bed so that she could pray over the “bad girl” that God was punishing with his rage; the same aunt whose son raped and abused S for several years as a pre-teen; the same aunt who, when she found her son sexually abusing 7-year old S, forced the terrified little girl to sit in a washtub while she poured scalding hot water on S, calling her “a filthy whore.”

washtub

S, the “bad girl,” felt guilty that she was tired of giving up her life to ungrateful relatives; that she was mad at God for his continued punishment of her; and that she was now seeking counseling help when all of her “Christian friends” [note: her emphasis] told her that it was a sin against God to do so.

S’s spiritual assessment revealed that her paternal grandfather was Native American. When S spoke of him, her voice lowered, her face softened, and her body visibly relaxed. Having died years earlier, S described her grandfather as the only person who had ever shown her love, and the only person whom she could ever trust. He had lived on a farm, and when she visited him as a child, they would walk the fields together, hand in hand. He taught S to respect nature; that she was one with mother earth and all her creatures. The gentleness of her beloved grandfather’s Native American spirit world was distinctly at odds with the punitive God of her mother’s teachings.

A myriad of experiences with my Lakota friend Sonny seeped into my consciousness as I listened to S’s memories (see Mitakuye Oyasin). After several weeks with S, I carefully broached the topic of the dichotomy between what S had learned from her mother and aunt about the “burning pit of fire” that was hell, and S’s quiet certainty that her grandfather lived on peacefully in the spirit world. At times, she even felt his presence around her. S’s eyes widened as she struggled to reconcile the vast differences between those two beliefs. That being enough, we left the discussion for a later time.

The next week, S returned, but without the Bible that her friends had given her. However, she began the session with more accounts of the pressure she continued to receive from her friends about the counseling they viewed to be the “devil’s work.” At her pronouncement, a tiny part of me shuddered, certain that S was going to discontinue therapy. Instead, S went on to say that she put the question of counseling before her grandfather. At home, she had performed her usual ritual of sitting on the floor with his picture, and lighting a candle. She gave him my name and asked what he saw in my heart.

candle

He showed S a majestic, snow-covered mountain with a crystal clear stream running zigzagged down its side. Her grandfather told S that my heart was as pure and deep as the mountain stream, and to trust that I would help her. He promised her that through me, S would come to know God.

The eyes of the heart, used yet another time, in yet another way. In that moment, I heard the echo of Sonny’s voice, raised in a sacred Lakota healing chant. Once again, God enacted His circles of grace.

S stayed with her brother through his death, all the while working on promises kept vs. those that were unreasonable; on justified guilt vs. unjustified; on the completely foreign thought of taking care of herself for once, rather than taking care of everyone else. And of returning to nature, where lightning was simply a weather phenomenon and nothing more. Where once nature had terrified her, now it gave her peace.

After her last session, I noticed that S had left a small grocery bag beneath her chair. I grabbed it and ran after her, only to find that she had disappeared. I asked my secretary to call S and tell her about the package she accidentally left. When I came back from lunch, the package was on my desk, with a note written in my secretary’s handwriting saying that this was for me. I opened it to find a color picture of a river strewn with rocks, the trees up to its edge splashed in fall colors of reds and oranges and golds. S described such a place as a favorite of her and her grandfather’s when they used to take walks together when she was a little girl.

river

There was a note typed in the corner:

I KNOW

When I see the wind blow gently through the trees,
I know you’re there.
When I stop to see life’s reflections in the rivers and streams,
I know you’re there.
When the scent of the flowers fill the air with their aroma,
I know you’re there.
How do I know you care?
I know you’re there.

Godspeed, S. Be well as you finally begin your own journey. Wherever it takes you, know that He loves you and that He will always be there.

Thank you for the privilege of sitting with you in the darkness. Walk on now, bathed in light, and in peace.

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Thursday Re-View — “The Shoulders of Giants”

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I’ve said it before – at times, my naiveté astounds me.

  • Licensed Professional Counselor – check.
  • Loss & Bereavement Specialty – check.
  • Survived Mom’s death 25 years ago, when she was only 59 years old – check.
  • Working through the grief process (and it is a process) for Dad, who died a year and a half ago at the age of almost 87 years old – check.
  • Prepared for the grief involved in no longer having a parent alive – not even close.

Everyone grieves differently. It depends on your relationship with that person; if you’ve lost someone before; whether their death was far too quick, with no time to say good-by or agonizingly slow, with unbearable suffering; expected or unexpected; natural or by suicide; your age; and, whether you’re male (like to take action) or female (want someone to listen). The list goes on… There’s no set “process,” per se – no time frame or stages that must be followed in the correct order. Some people act like nothing has happened, while others are prostrate with grief. Shock, denial, bargaining, depression, anger with lots of people (including God), until hopefully – finally – some measure of acceptance.

My patients often ask when they will have “closure,” and I answer honestly there is no such thing as closure, only survival. They will survive.

My head knows this. My heart struggles to keep pace.

Mom’s death was 6 months after her breast cancer diagnosis, after having suffered through a modified radical mastectomy, chemotherapy, surgery, and a 29-day hospital stay. The fact that she was only 59 years old and my close friend made her torment agonizing to watch; so much so, that I actually asked her physician if I could end her suffering (and mine) by just letting her drift away with extra morphine. He shot that option down quickly.

Dad’s death at almost 87 years old was sudden. Two weeks before he died, on Father’s Day, we noticed he was slurring his words. We took him to the doctor, got him a bright red 3-wheel walker and made plans to either move him downstairs in his home (one floor, no steps) or to have him move in with my sister. That was all underway when I got the call that Dad passed away. He was walking down his driveway to get his newspaper, a morning ritual, when he collapsed. The neighbor called 911 when she saw him lying there, but he died “instantly.” (Do doctors tell that to everyone to ease their suffering? Just wondering…)

The shock of Mom’s death shook me to my core. Admittedly, after 25 years, I still light a candle every day in her memory. I don’t know how long Dad’s death will sit so fresh and raw; it’s been less than a year.

But this I do know – I was totally unprepared for the separate grief that comes with no longer having a “parental unit.” It’s unique – it’s different – it’s terrible – it’s lonely – it’s frightening.

I feel abandoned, lost, adrift, disoriented, incomplete. There’s no one to watch my back or to be my cheering section or to give me a safe place to fall.

Where is my anchor? Who will advise me, guide me, forgive me, support me, challenge me, love me unconditionally? Who will comfort the little girl in me, the lost child, as only my parents could?

I once told Dad when he was really missing Mom (which was for the entire 25 years) that he and Mom had given me everything I needed to be a success, that I had “stood on the shoulders of giants.” They were my giants.

shoulders

“If I have seen further…it is by
standing upon the shoulders of giants.”

~ Sir Isaac Newton

He liked the thought of that and remembered with gratitude all those who helped him along the way.

I shared with him something I felt while at the Baccalaureate service the night before my grad school Commencement. While I sat immersed in the joyous music that filled the cathedral, I could almost sense two lines of ancestors standing behind me. They were in pairs, from my shoulders, back and up, until I lost sight of them. Without turning around, I could visualize them. Somehow I knew that one line included Mom, my maternal grandparents and the rest of her family, while the other line was my paternal grandparents…on and on and on. They were all shapes and sizes and colors, all dressed in different clothing that gave a clue to their work, some younger than others, some faces lined while others were smooth. They were all smiling. Generation after generation after generation.

I have been schooled well.

The best psychotherapists are those who have been through pain. Henri Nouwen, a Catholic priest and author (1932 – 1996), reminds us that “in our own woundedness, we can become a source of life for others.”

Who better to sit with you in the darkness than a wounded healer?

I have sat with people who have lost their child (the worst loss), spouse, parent, sibling, friend, grandparent, married lover, colleague – but never someone who was grieving the loss of both parents as a “unit.” How is that possible?

But now, as is always the case, I will be able to sit with someone who no longer has parents – as one person said to me, “Welcome to the Orphan’s Club” – and empathize with their longing for wholeness.

But a broken heart empties us of all that we might hang on to, often too long, so that it might be filled up with something greater and more wondrous that we could ever imagine or think ourselves deserving of. When I am tired enough of struggling, I will once again accept Your glorious grace. I will once again accept the plans You have for me. I know You understand.

Help me to be Your Counselor, Defender, Teacher, Listener, Instrument, Vessel, Comforter, Starfish Thrower (thank you, Diana), Harvester, Secret Keeper (bless you, T), Heartsong, Wellspring.

“Much is expected from those to whom much has been given.”
~ Luke 12:49

Dad’s favorite saying, as well as the way he always signed off on a letter or in a card – “Keep the Faith.” I’m doing my best, Dad, but I still miss both of you more than I ever thought possible.

Like I said, I have stood on the shoulders of giants – Mom and Dad the biggest and most important of all. They lifted me up so I could soar.

Your Circles of Grace – those Circles of Compassion – widen.

My thanks.

shoulders 2

_____________________________

Love – Gratitude

cala liliesl

Love – Gratitude

The agony is so great…
and yet I will stand it.

Had I not loved so very much
I would not hurt so much.

But goodness knows I would not
want to diminish that precious love
by one fraction of an ounce.

I will hurt,
and I will be grateful to the hurt
for it bares witness to
the depth of our meanings,
and for that I will be
eternally grateful.

_______________________________

by Shirley Holzer Jeffrey
Death: The Final Stage of Growth
Elisabeth Kubler-Ross (1975)

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Thursday Re-View — “Remembrance” (1989)

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Remembrance

February 29, 1988. An oddity, Leap Year. It comes every four years, then departs without a trace. Not for me. The pain of that day is seared in my memory. That’s the day that cancer took my Mom, when she was 59 years old. That’s the day that I lost a part of me forever.

The obituary page…so impersonal. Facts: names, dates, places, times. Nothing, yet supposedly everything. How can Mom be a statistic in black and white to them, her whole life listed in capsule form? Yet they know nothing of her, nothing at all.

Mom. Quitting school at 16 in order to bring home money for the family. Falling in love with a sailor in his dress blues, marrying him at 18, and working at 41 years of life together. Two daughters, a business, long days. Always saving for a rainy day, postponing trips “until we are retired.”

Memories. A cool hand on my forehead whenever I had a fever (it comes full circle, Mom; I did the same for you at the end). My favorite meal. Unending words of encouragement and support. Holding my hand tightly whenever I crossed the road on my way to school. Sitting together on a swing under the tree, having morning coffee together. (I didn’t even like coffee, but I liked the time with you.) Going shopping and having lunch together. A blinding smile that lit up the Academy of Music: “My daughter, the Doctor.” Waking up in the hospital after all four of my surgeries, and seeing you at the bottom of the bed, waiting. Trips to Europe, and cruises with my own cabin. Christmas Eve, filled with Italian dinners and hours of opening presents.

Alex. The child against the odds, as I had been for you. My Alex, your third grandson, who you greeted every morning for 16 months as if he were a king. You showered him with the same love you had given me. Now, he asks who you are in family pictures. His beloved Mimi. He was barely 2 ½ when you left. How can I be a Mother to him, as you were to me, when you’re not here to guide me?

June, 1987. Cancer. Dr. Friedman’s office: lumpectomy or mastectomy? Point-blank: “Theresa, what would you do?” As if any of us can outsmart cancer. But I know better. I know how poor a woman’s chances really are. 1-800-4-CANCER. Very supportive, very optimistic, very wrong.

Chemotherapy. Six long months of pills and injections; you were node-positive. The cancer cells will die (so will you). Doesn’t chemotherapy kill the healthy cells, too? You told me losing your hair hurt more than the nausea and vomiting, and I believed you. The wig was rejected, a turban grudgingly accepted.

Change. You’re different, Mom. You’re giving up. You talk less, you care less, you take longer to heal. You’re too sick to tell jokes or have a beer or yell at Dad or give advice. I don’t know you, and I’m impatient because I want the real you back. I’m selfish, and I feel guilty for thinking you should be better.

Super Bowl Sunday, January, 1988. I am depressed. You’re too sick to come to the annual party (you started this tradition, Mom; you have to be here!). The doorbell rings, and you’re at my front door in a long, navy blue bathrobe, turban on your head, bedroom slippers, and your stomach swollen like when I was 9 months pregnant. But you’re here, and my smile lights up the foyer (you always said I was pretty when I smiled). Later, I realized that my house was the last place you would visit before your final trip to the hospital.

February 1, 1988. The first day of the last month of your life. First, removal of several liters of fluid from your stomach, then surgery to implant a porta-cath, followed shortly by exploratory surgery. “Did it turn out all right, Theresa?” “Yes, Mom, it’s okay.” Really? No. Half of your liver is gone, the cancer is strangling your intestines, spreading throughout your body cavity. Six months of chemotherapy. For what? To make the time you had left more miserable?

Roller coaster. The doctors have elected me as the family spokesperson, the person to hear the news and disseminate it to the rest. I cringe every time I turn the corner in the hallway of the hospital, and hear the latest test results. Where there’s life, there’s hope, daughter Theresa says. Mom’s spirit will beat this. But Dr. Theresa knows there’s no chance of recovery. A constant battle; which person do I believe?

Warren Hospital. Your window on the 2nd floor…it’s easy to find from outside. It’s the one with hundreds of cards taped to the window and walls. Doris, the nurse’s aide who helps you sip iced tea, says she’s never seen this many cards for a patient. It’s the room with 29 days of non-stop flower arrangements, brightening those dreary February days, helping to mask the ever-present smell of cancer.

Flowers

Hospital furniture. Adjustable bed and wheelchair. IV tubes, blood transfusions, catheter, oxygen, stomach tube, intestinal feeding tube. A water mattress to cool your body temperature, a fan blowing on your elevated legs (blood clots, remember?). A washcloth on your forehead, Depend undergarments (full circle), hospital robes, blood pressure cuffs, electronic IVs. Beep, beep, beeping…STOP! I want to rip them all out, this is barbaric. I want to end your suffering (or is it mine?) with an overdose of morphine. I ask Dr. Friedman for extra morphine. “Theresa, you don’t know what you’re saying.” Or do you?

Doctor’s words of wisdom: your mother will not leave the hospital…I almost cried when I opened her up and saw the extent of her cancer…if only we could get back some of her spirit, she might have a fighting chance…it would be merciful if a blood clot loosened; it would be quick…should we write a “Do Not Resuscitate” order?…you may have to make the decision to stop feeding her (starve her???)…give her as much morphine as she wants…there are good ways and bad ways to die, and your mother has shown more courage and dignity in her death than I’ve ever seen…I’m sorry, I wish there was more that I could do.

You knew, didn’t you, Mom? You told the nurses you didn’t want this to take too long, that your family was suffering too much. At your request, a priest administered Last Rites…we had no idea. “Are you mad at me, Theresa, for refusing more chemo?” “No, Mom, (choke) I’d do the same thing.” You told us where all of your jewelry was, and what clothes to have Dad wear at your viewing and funeral. You wanted to be in a pink or blue nightgown. Pink? I never saw you in pink. We got you blue, Mom, and the saleslady at Sigal’s offered her deepest sympathies.

Saturday, February 27th. It snowed, so Steve drove Alex and me. You were delirious, but you were coherent enough to want to see Alex. Yes. “Dee dee (your pet name for him).” Alex was afraid of you and the tubes, but your frightened look makes me keep him there awhile longer. You fought the morphine to stay awake, and wanted us all by the bed. Peach schnapps? Okay, Mom, we’ll make sure everyone is offered it at the house. You waited until we left to close your eyes, taking one last long look at your family. You slept peacefully, and Dad didn’t even try to wake you to say good-bye.

Sunday, February 28th. The hospital called us…were we coming? Of course; Dad hadn’t missed a day. The hospital bed was lowered (don’t the blood clots matter any more?) and someone had placed your rosary in your hand. Your breathing was ragged, the machines pumping and beeping, the flowers the only bright spot in the room. June, your favorite nurse, cried in my arms in the hall. She told me that this was how it ended. This is how it ends? All those years of joy and sorrow, hopes and dreams…they just stop? (Is this really happening? I’ll wake up from this nightmare soon, and everything will be all right.) They said hearing is the last sense to go, so I held your lavender rose close and said good-bye, thanking you, loving you, telling you it was all right for you to go. The nurses came at the end of their shift to say good-bye, forming a circle of love around your bed. You continued to touch people, Mom, even at your worst. If only they had known you at your best!

Monday morning, 3am. The phone call. Good. It is done. No more suffering. So many details and decisions, so many people with so many kind words and so much food. Steve makes the trip to the hospital to take down all of the cards. Your room was empty when he got there. The bed was stripped of you, as was my life.tear

Tuesday, the viewing. Wednesday, the funeral. Numbness. Would you believe we’re trying to comfort others in their grief? A woman kneeled with her head in my lap, her tears soaking my dress. (Or were they my tears? No matter.) It’s not really you in that casket, Mom. You’re in a far better place. We got you slippers because your feet were always cold, and I put on your glasses so you could see. The funeral director is amazed at the number of floral tributes; they circled the room many times. Soon, they would grace the rooms of those back in the hospital, and the nurse’s station as well. By Wednesday evening, all is over. My new life without you has just begun.

March, 1989. A year has passed one day at a time. My frequent bouts of grief have given way to less frequent bouts, but when they come, they are just as deep and painful. The thing I miss most is talking to you every day at lunch time (how long will it be before I no longer catch myself reaching for the phone to tell you something important?). This is all so unbelievable; you’re just away on vacation and you’ll be back again, soon. I still get angry when I see older couples holding hands, and I put up a Christmas tree even though I didn’t have the heart for it. I did it for Alex, and for you. I am his mother, as you were mine. That’s what mothers do. I couldn’t go into a Hallmark store at Mother’s Day; maybe someday I’ll be able to pass the cards without crying.

I miss you, Mom, as a mother, and as a friend. Everyone tells me that I’ve been elected to take your place. Silly people…no one can do that. But your memory lives on in my heart, and those parts of you I passed on to Alex will live on in his children, his children’s children, and beyond. Every time I make seafood on Christmas Eve, read a book you would have enjoyed, give Alex a hug, make potato pancakes for Dad, help someone in need, keep watch over the family, say a prayer of thanksgiving for you…at each of these times, I will celebrate the memory of your being.

I miss you, Mom. But if I look around, you are everywhere, in all things. And most of all, in me. You will be with me always, and I know from a deep, abiding faith that someday, we will be together again. Until then, I will remember you, and keep you alive in my heart. I will live as you would have wanted me to, and I will do my best to remember to treat people with dignity, honor, and truth, as you taught me.

Thank you, Mom, for my life.

Thank You, God, for my mother.

May You grant her everlasting peace.

cala liliesl

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Remembrance II

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June 29, 2012: Remembrance of Dad

I held your hand in the driveway, right where you fell.

The same hand that had once changed my diapers, given me a bottle, taught me how to ride a bike and drive a car, that fed me my first (and last) piece of liver, that cut my hair into a pixie, that held onto me when I crossed a road, that gave me away in marriage, that slipped me money at the beginning of every month, that signed the checks for oh-so-many years of education, that taught me the importance of giving…

I held your hand in the driveway, right where you fell. In disbelief.

That Friday morning, ready to leave for work, the phone rang. Dad probably couldn’t wait until my Bluetooth call while I was on my way to work; he must have had something important to tell me that happened on this date, from the calendar he kept with all family events (big and little) catalogued.

Something very important. My sister’s voice – hysterical, sobbing – “Dad’s dead.”

I calmly called Michael, who told me to wait until he got home from the office; he didn’t trust me to drive. On our way there – on our way “home” – I knew it would take at least an hour – I prayed that you would still be there when I got to the house.

How could I have prayed for what I saw when I arrived? The State Trooper was just leaving as I flew out of the passenger seat and ran across the lawn – the same lawn that you mowed on your John Deere, a special handle screwed into its casing so you could drive your grandsons around with you 30 years ago – to the figure half-hidden by the hedge, covered with a thin white blanket.

I heard someone wail in anguish and didn’t know it was me – your baby of 58 years.

Where was the dignity in this? Dad – my father – a World War II veteran – lying in his driveway, in the sunshine. (Thank goodness for your being covered; lupus doesn’t like sunshine, remember?)

I held your hand in the driveway.

It was right where I had seen Mom standing at your side, oh-so-many years ago after she died, as Steve, Alex and I pulled out of your driveway; by the flowering tree Mom loved that nestled the bird feeders you kept filled for the songbirds and squirrels.

The diamonds in Mom’s ring sparkled in the sunshine as my fingers entwined with yours, your strong hands, nails neatly trimmed, relaxed…at peace. My tears fell onto our hands, a baptism, a cleansing of our relationship, joined with Mom in a bond not unlike diamonds that would only strengthen with the weight of time passed.

There was a dignity in this, of a sort…a communion, a joining, rather than a separation… A quietness…a birth…an arrival upon the heels of a departure.

You were already being greeted by the God whom you so loved, along with Grammie and Grandpop, who sang the words of Matthew 3:17: “This is My Son, in Whom I am well pleased.”

A trembling voice echoed off the walls of my broken heart: “This is my Father, in Whom I am well pleased.”

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Related Post: Remembrance

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Of Storms Within

S shuffled into my office at the Cancer Center carrying a worn Bible in her left hand. A middle-aged large-boned woman who had never married, she had short gray hair, mens’ jeans and a plaid flannel shirt. With her tired eyes and slumped shoulders, she looked like she hadn’t smiled in years, at least.

S referred herself for issues regarding her role as primary caregiver to a brother who was dying from cancer. For the past 30 years, she had taken care of five different relatives through their cancer illness and death: her mother, brother, sister, aunt, and grandmother.

Thirty years ago, on her deathbed, S’s mother grabbed the collar of S’s blouse and made her daughter swear to “take care of” her brothers and sisters. S still felt her mother’s grip on her throat and on her life.

S fulfilled her promise to the point that she even nursed her aunt through her cancer: the same aunt who, whenever there was a thunderstorm when S was a little girl, made her niece get under the covers of her bed so that she could pray over the “bad girl” that God was punishing with his rage; the same aunt whose son raped and abused S for several years as a pre-teen; the same aunt who, when she found her son sexually abusing 7-year old S, forced the terrified little girl to sit in a washtub while she poured scalding hot water on S, calling her “a filthy whore.”

washtub

S, the “bad girl,” felt guilty that she was tired of giving up her life to ungrateful relatives; that she was mad at God for his continued punishment of her; and that she was now seeking counseling help when all of her “Christian friends” [note: her emphasis] told her that it was a sin against God to do so.

S’s spiritual assessment revealed that her paternal grandfather was Native American. When S spoke of him, her voice lowered, her face softened, and her body visibly relaxed. Having died years earlier, S described her grandfather as the only person who had ever shown her love, and the only person whom she could ever trust. He had lived on a farm, and when she visited him as a child, they would walk the fields together, hand in hand. He taught S to respect nature; that she was one with mother earth and all her creatures. The gentleness of her beloved grandfather’s Native American spirit world was distinctly at odds with the punitive God of her mother’s teachings.

A myriad of experiences with my Lakota friend Sonny seeped into my consciousness as I listened to S’s memories (see Mitakuye Oyasin). After several weeks with S, I carefully broached the topic of the dichotomy between what S had learned from her mother and aunt about the “burning pit of fire” that was hell, and S’s quiet certainty that her grandfather lived on peacefully in the spirit world. At times, she even felt his presence around her. S’s eyes widened as she struggled to reconcile the vast differences between those two beliefs. That being enough, we left the discussion for a later time.

The next week, S returned, but without the Bible that her friends had given her. However, she began the session with more accounts of the pressure she continued to receive from her friends about the counseling they viewed to be the “devil’s work.” At her pronouncement, a tiny part of me shuddered, certain that S was going to discontinue therapy. Instead, S went on to say that she put the question of counseling before her grandfather. At home, she had performed her usual ritual of sitting on the floor with his picture, and lighting a candle. She gave him my name and asked what he saw in my heart.

candle

He showed S a majestic, snow-covered mountain with a crystal clear stream running zigzagged down its side. Her grandfather told S that my heart was as pure and deep as the mountain stream, and to trust that I would help her. He promised her that through me, S would come to know God.

The eyes of the heart, used yet another time, in yet another way. In that moment, I heard the echo of Sonny’s voice, raised in a sacred Lakota healing chant. Once again, God enacted His circles of grace.

S stayed with her brother through his death, all the while working on promises kept vs. those that were unreasonable; on justified guilt vs. unjustified; on the completely foreign thought of taking care of herself for once, rather than taking care of everyone else. And of returning to nature, where lightning was simply a weather phenomenon and nothing more. Where once nature had terrified her, now it gave her peace.

After her last session, I noticed that S had left a small grocery bag beneath her chair. I grabbed it and ran after her, only to find that she had disappeared. I asked my secretary to call S and tell her about the package she accidentally left. When I came back from lunch, the package was on my desk, with a note written in my secretary’s handwriting saying that this was for me. I opened it to find a color picture of a river strewn with rocks, the trees up to its edge splashed in fall colors of reds and oranges and golds. S described such a place as a favorite of her and her grandfather’s when they used to take walks together when she was a little girl.

river

There was a note typed in the corner:

I KNOW

When I see the wind blow gently through the trees,
I know you’re there.
When I stop to see life’s reflections in the rivers and streams,
I know you’re there.
When the scent of the flowers fill the air with their aroma,
I know you’re there.
How do I know you care?
I know you’re there.

Godspeed, S. Be well as you finally begin your own journey. Wherever it takes you, know that He loves you and that He will always be there.

Thank you for the privilege of sitting with you in the darkness. Walk on now, bathed in light, and in peace.

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Echoes of Darkness Sheathed in the Light

In Memoriam – Mom
April 25, 1928 – February 29, 1988

[written March 1, 2009]

I thought it had passed.

Just yesterday, I remarked to my sister – “This is the first February in 21 years that hasn’t been brutal.”

Then this morning, just the mention of the phone call in the early morning darkness, when Dad told me you had died and I said, “Good” – (Good for who – me? You? The echo of guilt lingers still…) – brings back the grief like a wave crashing into rock, and I am pulled under in an instant, drowning.

The well of grief swallows me, the darkness returns, and I ache with loss – the emptiness – the missing of you – the longing for your closeness – (Me? The one who hated hugs? The one who now hugs all those in need, desperate for their/my/your touch?).

My right hand trembles, my teeth chatter, and I rock…I ache…I mourn.

My tears flood the emptiness with despair, until the well is filled to overflowing, and just when there can be no more left, the flood gates open with a rush of white-hot tears – searing, scalding, scarring – as they traverse the channels carved in my soul.

I escape then, but to where? A place of quiet, of gray, of nothing, where no one or no thing exists…where no one or no thing can hurt.

I am numb.

I cease to feel, to breathe, to mourn…quiet, waiting, collecting, remembering, forgetting. I want to stay in this nothing, where the past and present blend, simply waiting. I could spend eternity here, neither warm nor cold, neither black nor white – nothing.

But then a soft white light burns through the fog – slowly, steadily, purposefully – coming toward me. And when I turn from it, it envelops me with warmth, an embrace, a distant memory, a familiar voice, a whisper. It seeks, it flows, it permeates, it dissolves, it heals – slowly, completely. It restores breath into my lungs, it touches my hand and the trembling ceases.

The crying stops and I return. Depleted, yet complete, filled with the sense that love hurts and heals, devours and regenerates, erases then re-creates, takes away only to be made whole.

If I love, I risk.

cala liliesl

My losses seem legion, but my blessings lift me to a place I would not have seen had I not been buried. The tears that drowned me in their ending are transformed into the healing waters of a baptism, a beginning, a grace.

I hesitate – these wings have weight – do I want what they hold? A familiar stirring inside me – a blossoming – a peace – a knowing that this is right and good. The weight will be lifted when I surrender.

And I hear the whispered promise – “I will be with you, always.” – and I feel Your embrace lift me up, then release me. I soar back into life, toward the light and Your promise, and I know I am who I am because of You, because of Your love.

Of whom do I speak? Of my Mother? Of God? Of His Mother? It matters not; only that I return. Only that I remember Your voice as I reach out to those in need. That I am present in their pain – that I quiet their tears – that I wait in their darkness – that I am their light and their hope as You were/are/will always be to me.

Lift me up, so that I might lift them.
Love me, so that I might love them.
Give me hope, so that I might bring hope to them.
Guide me, so that I might guide them.
Give me Your words, so that I might speak them.
Give me Your hearing, so that I might listen to them.
Heal me, so that I might heal them.

Remember me, as I remember You.

I am who I am, because of You.

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Related Post: Remembrance

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Thursday Re-View — “She Who Hears the Cries of the World”

Occasionally, I will post “Thursday Re-View,” a post from when I first started my blog that you may have missed. Enjoy!

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SHE WHO HEARS THE CRIES OF THE WORLD

Kuan Yin

She occupies a space on my mantle, so that every time I sit in our family room, I can be reminded of one of the ways I see myself as a counselor.

Kuan Yin. In Buddhism, the Goddess of Mercy. The Bodhisattva (Being of Enlightenment) of Compassion. She who hears the cries of the world.

Originally, as an intern at Loyola University Maryland for their Pastoral Counseling Program, I earned hours toward my Master’s Degree at a loss and bereavement center. That meant working will terminally ill people to help prepare them for death, as well as being available to their family members after the loss of their loved ones. We saw people in their homes, in an oncology center, in nursing homes and/or in our offices.

One day at lunchtime, a female chaplain noticed that I was subdued and asked what was wrong. I didn’t even realize I looked any different. I told her that going into the nursing homes was particularly difficult for me, as so many of the people housed there, although alive, appeared to have already died, their beings diminished. In fact, the nurses would tell me that some nursing home guests had not had visitors in more than 10 years (yes – you read that right – 10 years). The musty smells, their feathery moans, the pleading for help, the anguished cries, the gloomy atmosphere – all left a weighty hopelessness in me long after I ended each visit.

The chaplain, understanding in her eyes, offered this: “Theresa, when you are in the nursing home, for the residents…you are their light.” She paused to make sure I heard. “You might be the only “outside” person they’ve seen in far too long. For them, in a day that’s no different than any other, you are their light.”

I’ve never forgotten that. You Are Their Light.

I’ve learned that many of us don’t look toward the light until we’re alone in the darkness. That light brings us hope, warmth, a reason to get up and move forward. It’s a beacon, a guide, a flame, a spark, an illumination.

Then a funny thing happens. A quote I keep on my desk reminds me that with each act of giving, there is always something good in return. “You cannot hold a torch to light another’s path without brightening your own.”

Smiling, being their light, helped me to shed light into my own dark and broken places.

Thank you, Chaplain Susan, for your wisdom and insight so long ago. I remember. In remembering, I, too am transformed.

“Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.”
~ Albert Schweitzer

So I seek to bring light. To be a messenger. To be present. To be a co-journeyer. To hear their cries.

Kuan Yin. She Who Hears the Cries of the World.

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The Shoulders of Giants (Once Again…)

On this, the first anniversary of  Dad’s death, I chose to repost something from almost 3 months ago. My feelings stand.

img206

I’ve said it before – at times, my naiveté astounds me.

  • Licensed Professional Counselor – check.
  • Loss & Bereavement Specialty – check.
  • Survived Mom’s death 25 years ago, when she was only 59 years old – check.
  • Working through the grief process (and it is a process) for Dad, who died not quite a year ago at the age of almost 87 years old – check.
  • Prepared for the grief involved in no longer having a parent alive – not even close.

Everyone grieves differently. It depends on your relationship with that person; if you’ve lost someone before; whether their death was far too quick, with no time to say good-by or agonizingly slow, with unbearable suffering; expected or unexpected; natural or by suicide; your age; and, whether you’re male (like to take action) or female (want someone to listen). The list goes on… There’s no set “process,” per se – no time frame or stages that must be followed in the correct order. Some people act like nothing has happened, while others are prostrate with grief. Shock, denial, bargaining, depression, anger with lots of people (including God), until hopefully – finally – some measure of acceptance.

My patients often ask when they will have “closure,” and I answer honestly there is no such thing as closure, only survival. They will survive.

My head knows this. My heart struggles to keep pace.

Mom’s death was 6 months after her breast cancer diagnosis, after having suffered through a modified radical mastectomy, chemotherapy, surgery, and a 29-day hospital stay. The fact that she was only 59 years old and my close friend made her torment agonizing to watch; so much so, that I actually asked her physician if I could end her suffering (and mine) by just letting her drift away with extra morphine. He shot that option down quickly.

Dad’s death at almost 87 years old was sudden. Two weeks before he died, on Father’s Day, we noticed he was slurring his words. We took him to the doctor, got him a bright red 3-wheel walker and made plans to either move him downstairs in his home (one floor, no steps) or to have him move in with my sister. That was all underway when I got the call that Dad passed away. He was walking down his driveway to get his newspaper, a morning ritual, when he collapsed. The neighbor called 911 when she saw him lying there, but he died “instantly.” (Do doctors tell that to everyone to ease their suffering? Just wondering…)

The shock of Mom’s death shook me to my core. Admittedly, after 25 years, I still light a candle every day in her memory. I don’t know how long Dad’s death will sit so fresh and raw; it’s been less than a year.

But this I do know – I was totally unprepared for the separate grief that comes with no longer having a “parental unit.” It’s unique – it’s different – it’s terrible – it’s lonely – it’s frightening.

I feel abandoned, lost, adrift, disoriented, incomplete. There’s no one to watch my back or to be my cheering section or to give me a safe place to fall.

Where is my anchor? Who will advise me, guide me, forgive me, support me, challenge me, love me unconditionally? Who will comfort the little girl in me, the lost child, as only my parents could?

I once told Dad when he was really missing Mom (which was for the entire 25 years) that he and Mom had given me everything I needed to be a success, that I had “stood on the shoulders of giants.” They were my giants.

“If I have seen further…it is by
standing upon the shoulders of giants.”

~ Sir Isaac Newton

He liked the thought of that and remembered with gratitude all those who helped him along the way.

I shared with him something I felt while at the Baccalaureate service the night before my grad school Commencement. While I sat immersed in the joyous music that filled the cathedral, I could almost sense two lines of ancestors standing behind me. They were in pairs, from my shoulders, back and up, until I lost sight of them. Without turning around, I could visualize them. Somehow I knew that one line included Mom, my maternal grandparents and the rest of her family, while the other line was my paternal grandparents…on and on and on. They were all shapes and sizes and colors, all dressed in different clothing that gave a clue to their work, some younger than others, some faces lined while others were smooth. They were all smiling. Generation after generation after generation.

I have been schooled well.

The best psychotherapists are those who have been through pain. Henri Nouwen, a Catholic priest and author (1932 – 1996), reminds us that “in our own woundedness, we can become a source of life for others.”

Who better to sit with you in the darkness than a wounded healer?

I have sat with people who have lost their child (the worst loss), spouse, parent, sibling, friend, grandparent, married lover, colleague – but never someone who was grieving the loss of both parents as a “unit.” How is that possible?

But now, as is always the case, I will be able to sit with someone who no longer has parents – as one person said to me, “Welcome to the Orphan’s Club” – and empathize with their longing for wholeness.

But a broken heart empties us of all that we might hang on to, often too long, so that it might be filled up with something greater and more wondrous that we could ever imagine or think ourselves deserving of. When I am tired enough of struggling, I will once again accept Your glorious grace. I will once again accept the plans You have for me. I know You understand.

Help me to be Your Counselor, Defender, Teacher, Listener, Instrument, Vessel, Comforter, Starfish Thrower (thank you, Diana), Harvester, Secret Keeper (bless you, T), Heartsong, Wellspring.

“Much is expected from those to whom much has been given.”
~ Luke 12:49

Dad’s favorite saying, as well as the way he always signed off on a letter or in a card – “Keep the Faith.” I’m doing my best, Dad, but I still miss both of you more than I ever thought possible.

Like I said, I have stood on the shoulders of giants – Mom and Dad the biggest and most important of all. They lifted me up so I could soar.

Your Circles of Grace – those Circles of Compassion – widen.

My thanks.

One Year Ago…

June 29, 2012: Remembrance of Dad

I held your hand in the driveway, right where you fell.

The same hand that had once changed my diapers, given me a bottle, taught me how to ride a bike and drive a car, that fed me my first (and last) piece of liver, that cut my hair into a pixie, that held onto me when I crossed a road, that gave me away in marriage, that slipped me money at the beginning of every month, that signed the checks for oh-so-many years of education, that taught me the importance of giving…

I held your hand in the driveway, right where you fell.  In disbelief.

That Friday morning, ready to leave for work, the phone rang.  Dad probably couldn’t wait until my Bluetooth call while I was on my way to work; he must have had something important to tell me that happened on this date, from the calendar he kept with all family events (big and little) catalogued.

Something very important.  My sister’s voice – hysterical, sobbing – “Dad’s dead.”

I calmly called Michael, who told me to wait until he got home from the office; he didn’t trust me to drive.  On our way there – on our way “home” – I knew it would take at least an hour – I prayed that you would still be there when I got to the house.

How could I have prayed for what I saw when I arrived?  The State Trooper was just leaving as I flew out of the passenger seat and ran across the lawn – the same lawn that you mowed on your John Deere, a special handle screwed into its casing so you could drive your grandsons around with you 30 years ago – to the figure half-hidden by the hedge, covered with a thin white blanket.

I heard someone wail in anguish and didn’t know it was me – your baby of 58 years.

Where was the dignity in this?  Dad – my father – a World War II veteran – lying in his driveway, in the sunshine.  (Thank goodness for your being covered; lupus doesn’t like sunshine, remember?)

I held your hand in the driveway.

It was right where I had seen Mom standing at your side, oh-so-many years ago after she died, as Steve, Alex and I pulled out of your driveway; by the flowering tree Mom loved that nestled the bird feeders you kept filled for the songbirds and squirrels.

The diamonds in Mom’s ring sparkled in the sunshine as my fingers entwined with yours, your strong hands, nails neatly trimmed, relaxed…at peace.  My tears fell onto our hands, a baptism, a cleansing of our relationship, joined with Mom in a bond not unlike diamonds that would only strengthen with the weight of time passed.

There was a dignity in this, of a sort…a communion, a joining, rather than a separation…  A quietness…a birth…an arrival upon the heels of a departure.

You were already being greeted by the God whom you so loved, along with Grammie and Grandpop, who sang the words of Matthew 3:17: “This is My Son, in Whom I am well pleased.”

A trembling voice echoed off the walls of my broken heart: “This is my Father, in Whom I am well pleased.”

Of Hospitals, Loss & Love

When I worked in the Pastoral Care Department of a hospital that was designated a Level I Trauma Center (See: We Are Not a Number” & “Wounded Hearts“), my duties were varied – praying with a patient right before their surgery, comforting a family waiting in the ER for their family member, rushing to any room that was involved in a Code, contacting family members for any patient who was brought in by Medevac Helicopter, or even sitting with anyone alone in the ER, looking scared and in pain. That last description was just about everyone.

In the rare event that I had a chance to try for some rest in the on-call room, I would prop my feet up and close my eyes until the beeping of my pager broke into my reverie. Either that, or the whirring sound of the helicopter blades as the Medevac neared its landing pad on the roof. Then it would be off the bed, out the door, racing to the trauma bays. “ETA – 10 minutes.” Just enough time to arrive at the ER, get suited up, ready for whomever was brought in.

Sometimes it was a motor vehicle accident or an ATV rider without a helmet vs. a tree, a drunk driver crashing into a building, a lineman electrocuted by live wires, a lonely person who jumped from a bridge or took too many pills, someone rescued from a burning house or a factory explosion. All sorts of traumas passed through the doors.

Staff included ER doctors, nurses, chaplains, phlebotomists, x-ray techs, security guards, physician’s assistants – all standing in their appointed spot in the small area that included two fully equipped trauma bays, waiting for the flight nurses or EMTs to arrive with their patient. I never saw anyone or anything that was unprofessional; the focus was always on each arriving patient and doing whatever possible to save their lives. The staff moved as a team with quiet precision.

On a particularly busy night, our latest arrivals were a young mother and her child from a motor vehicle accident; her husband and their second child were taken to another hospital near-by. Thankfully, the child escaped with minor abrasions and a concussion, and was already in a bed in pediatrics. The mother took more time to stabilize with some broken ribs, a fractured wrist, abrasions and contusions. Following our treatment, she was whisked off for a C-T scan.

Business as usual followed each patient – housekeeping cleaned the area, doctors signed off on computers, security locked up valuables and technicians moved aside their portable x-ray machines.

Suddenly the double doors from inside the ER swung open and the young mother was brought back in. Puzzled, we looked to the tech who wheeled her past us into the surgical suite adjacent to the bays. This operating room was normally used for those patients with injuries severe enough that there wasn’t enough time to make it to a regular OR.

Knowing she didn’t need surgery, someone asked what was wrong.

“This seems to be the only private area available. The other hospital notified us that the husband will be okay, but we need to tell her that her other child died.”

The double doors to the OR shut with a quiet whoosh. Through the window I could see the doctor take the mother’s hand as he leaned closer. Two nurses stood at the other side of the bed. With that terrible news delivered in the gentlest and kindest of ways – the kind of news from which you never recover – we heard a cry released from the depths of her being, the OR suite unable to contain the sounds of her grief.

It pierced our ears and our hearts. Then, total silence. Not one sound came from any of us – and there were at least 20 staff present – as we froze in place. For us, nothing else existed but the mother’s agonized cry. It tore into us, demanding our respect and mindful attention.

In that terrible moment, it seemed as if the cries of all parents who ever lost a child (the worst loss) echoed through time…through generations…and reverberated off the walls of this very place.

A doctor stood in his scrubs, head thrown back with eyes closed, fists at his sides. Two nurses held each other in a tight embrace; the woman from housekeeping held her mop in mid stride; a resident’s hand stood motionless above a keyboard, typing stopped in mid-sentence; a security guard turned toward the wall.

My eyes met the doctor’s, whose mirrored the pain. In a single movement, my back slid down the wall and I held my knees in my arms, the tableau frozen with her raw grief.

After what seemed like forever, but could only have been a minute, a voice overhead announcing the ETA of another trauma snapped us out of our absorption. The area became a buzz of activity as we picked up where we had left off, grateful for the respite offered by much-needed focus, occupied with our assigned tasks.

We could push all of this aside, but the mother could not. We could hug our own children that night, or call to remind them of our love, but the mother could only do that with one child, rather than two.

Once again, as medical professionals we were reminded that regardless of our technology or expertise or willingness to switch places in order to keep children from harm, all stories do not have happy endings. Once again, there was no good answer for the question on everyone’s lips – “Why?” It was beyond our human understanding. And it hurt. It hurt terribly.

But for a brief moment, in that hospital, there were no differences in skin color or language, in gender or faith tradition, in economic status or profession, in looks or bank account. We were joined through threads of pain and compassion, of despair and hope…and of love.

We were together. Interconnected.

Although no one moved, you could almost feel our arms reaching out to the young mother in her grief, comforting her, reassuring her. And if you looked closely enough, you could almost see the faint outline of a little girl kissing her mother’s cheek good-bye…

Be well, my child. Play and laugh and sing. Your family loves you and will always remember you. And even though we never met you, all of us with your mother that night love you and remember you as well. In the too-short time you lived, you mattered to so very many of us.

From deep in our hearts, we send you our eternal blessings.

Circles of Grace and Compassion. A Circle of Love.

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Today’s Quote

When we honestly ask ourselves
which person in our lives means most to us,
we often find that it is those who,
instead of giving much advice, solutions, or cures,
have chosen rather to share our pain and touch our wounds
with a gentle and tender hand.
The friend who can be silent with us
in a moment of despair or confusion,
who can stay with us
in an hour of grief and bereavement,
who can tolerate not knowing, not curing, not healing
and face with us the reality of our powerlessness,
that is a friend who cares.

 ~ Henri Nouwen, 1932 – 1996 ~
Dutch-born Priest, Writer

The Last Good-bye

Ira Byock, M.D., a nationally recognized authority in end-of-life care, says there are only four things left to say that matter most at life’s end (indeed, while living as well):

Please forgive me.
I forgive you.
Thank you.
I love you.

These words have the power to transform relationships, whether to heal connections at the end of life, or during day-to-day living.

As you know from several of my earlier posts (Dancing with Chopin, You are My Sunshine), my past work in Hospice was a profoundly moving part of my life journey, a vocation to which I hope to return.

I was called to a nursing home to be with with Mary and her family as she entered the final stage of life known as “active dying.” It was only a matter of a few days. Cancer had ravaged her middle-aged body to the point that she looked much older than her years. Mary was kept sedated most of the time because of the constant pain, only occasionally coming out of it to become partially aware of her surroundings.

Mary was a widow with two children, both in their mid-thirties – a daughter who lived in North Carolina and a son who lived at home to care for his surviving parent. Mother and daughter had a falling out some years ago, and their relationship was strained at best. Mother and son were close, and Tom was always at his mother’s bedside. The most time away was perhaps 5 minutes for a bathroom and coffee break. Without a family of his own, Tom was devoted to his mother. The staff told me that for the past 6 weeks, he had never missed an 18 hour day at his mother’s bedside; they often had to force him to go home for some rest.

As hours stretched into days, Mary’s coma deepened and her body temperature rose, her moments of lucidity few and far between. The attending physician noted that Mary’s core temperature was 108 degrees; he had never seen a person live with a temperature that high. For days, I watched Tom talk to his mother, telling her how much he loved her and how he knew she could beat this cancer. Mary’s doctors had explained to Tom that her organs were shutting down – her death was imminent; his head understood the facts, but his heart could not – would not – accept them. She was suffering and I found myself wondering why she was hanging on to life when she was in so much pain.

I gestured for Tom to join me in the hall.

“You need to tell your mother that it is alright for her to go,” I counseled gently. “That you’ll be okay here without her…”

He pulled back, shocked and a little angry. I was asking him to give his mother permission to die; the person he loved more than anyone in the world, the person he needed more than anyone in the world. It went against every feeling of normalcy, safety and love that coursed through him. He couldn’t find words.

“Your mother is suffering. I know you want her to be with you forever, but her body just can’t do it anymore. She needs to hear that you’ll be okay after she’s gone.” I paused. “Does your sister know just how sick your mother is?”

Tom explained that he had called her 2 weeks ago, but heard nothing since. She wasn’t even planning to come to see their mother one last time.

So that was the reason Mary struggled to stay; she needed to hear from her children – both of them – that they would be okay. Only then could she drift away, finally at peace.

“Tom – please give me your sister’s phone number. It’s essential that your mother hear her daughter’s voice. Would you like me to call her?”

He nodded his head, eyes filled with tears, then turned to go back into his mother’s room. Changing his mind, he instead went through the door marked “exit” and ran out of the building.

While I stood looking at the door, hoping to see Tom, one of Mary’s nurses came by. I told her what happened. She was as surprised as I; Tom was never absent from his mother’s side, let alone in her last few hours. She left to get the daughter’s phone number.

Anna, Mary’s daughter in North Carolina, answered on the second ring. I introduced myself, told her I was at the nursing home with Mary and advised her of the doctor’s prognosis. If Anna wanted to say good-bye, it had to be now. Her answer was crying on the other end of the line, and in her tears, I could hear regret, shock, fear. And love…I could hear love.

I explained that Anna didn’t have time to get here from North Carolina, but that I would hold the phone to Mary’s ear so that her mother could hear her voice. Even in a coma, hearing is the last sense to leave, so I felt certain that whatever Anna wanted to say to her mother, it would be heard and accepted. I told her Mary was suffering and needed Anna’s permission to die.

As I held the phone to Mary’s ear, I could hear Anna’s voice cloaked in tears. As Anna continued, Mary’s eyes remained closed, but her body visibly relaxed. At one point, I saw her lips turn up the tiniest bit, and I knew Anna had been understood. After a few minutes, I softly told Mary that I was taking away the phone. Then I spoke to Anna and described what I had seen, telling her that she had given her mother a wonderful gift and blessing. I thanked her and promised that Tom would call her in a while.

Out in the hallway, there was no sign of Tom. I went to the nurse’s station for his phone number. No answer, so I left a voice mail. Fifteen minutes later, another voice mail, asking that he please return to the nursing home. I went to sit with Mary and noticed that her right hand kept grasping the sheet into a tight knot. As I held her other hand, I explained that Tom had to leave but that he would be back.

Please, I prayed silently, please bring Tom back. In my heart, I begged Tom to return because this time, his mother needed him.

After a half hour passed, I looked up to see Tom in the doorway. He looked exhausted but determined as he entered the room. He leaned over Mary and whispered in her ear, tears streaming down his face as he clutched her hands to his heart. Her agitation disappeared as he continued, his words known only to mother and son. Finally, totally spent, Tom laid his head on their joined hands and closed his eyes.

I leaned against the wall in a shadowed corner of the room, listening to Mary’s breathing grow more labored. The intervals between breaths grew longer, until after one long exhalation, the room stilled, the only sound Tom’s choking sobs. It was over.

As the physician pronounced Mary’s time of death, I reached out to touch Tom’s shoulder in communion with his grief.

An ending and a beginning. Sacred Ground. Holy Words.

Please forgive me.
I forgive you.
Thank you.
I love you.

I offer these words up to my friends and relatives; indeed, to humankind.

But most especially to Mom and Dad, to whom I should have said all of these things while they were alive.

Please do the same, today.

Honor the Circles of Grace all around us.

Remembrance II

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June 29, 2012: Remembrance of Dad

I held your hand in the driveway, right where you fell.

The same hand that had once changed my diapers, given me a bottle, taught me how to ride a bike and drive a car, that fed me my first (and last) piece of liver, that cut my hair into a pixie, that held onto me when I crossed a road, that gave me away in marriage, that slipped me money at the beginning of every month, that signed the checks for oh-so-many years of education, that taught me the importance of giving…

I held your hand in the driveway, right where you fell.  In disbelief.

That Friday morning, ready to leave for work, the phone rang.  Dad probably couldn’t wait until my Bluetooth call while I was on my way to work; he must have had something important to tell me that happened on this date, from the calendar he kept with all family events (big and little) catalogued.

Something very important.  My sister’s voice – hysterical, sobbing – “Dad’s dead.”

I calmly called Michael, who told me to wait until he got home from the office; he didn’t trust me to drive.  On our way there – on our way “home” – I knew it would take at least an hour – I prayed that you would still be there when I got to the house.

How could I have prayed for what I saw when I arrived?  The State Trooper was just leaving as I flew out of the passenger seat and ran across the lawn – the same lawn that you mowed on your John Deere, a special handle screwed into its casing so you could drive your grandsons around with you 30 years ago – to the figure half-hidden by the hedge, covered with a thin white blanket.

I heard someone wail in anguish and didn’t know it was me – your baby of 58 years.

Where was the dignity in this?  Dad – my father – a World War II veteran – lying in his driveway, in the sunshine.  (Thank goodness for your being covered; lupus doesn’t like sunshine, remember?)

I held your hand in the driveway.

It was right where I had seen Mom standing at your side, oh-so-many years ago after she died, as Steve, Alex and I pulled out of your driveway; by the flowering tree Mom loved that nestled the bird feeders you kept filled for the songbirds and squirrels.

The diamonds in Mom’s ring sparkled in the sunshine as my fingers entwined with yours, your strong hands, nails neatly trimmed, relaxed…at peace.  My tears fell onto our hands, a baptism, a cleansing of our relationship, joined with Mom in a bond not unlike diamonds that would only strengthen with the weight of time passed.

There was a dignity in this, of a sort…a communion, a joining, rather than a separation…  A quietness…a birth…an arrival upon the heels of a departure.

You were already being greeted by the God whom you so loved, along with Grammie and Grandpop, who sang the words of Matthew 3:17: “This is My Son, in Whom I am well pleased.”

A trembling voice echoed off the walls of my broken heart: “This is my Father, in Whom I am well pleased.”

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Remembrance (1989)

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Remembrance

February 29, 1988. An oddity, Leap Year. It comes every four years, then departs without a trace. Not for me. The pain of that day is seared in my memory. That’s the day that cancer took my Mom, when she was 59 years old. That’s the day that I lost a part of me forever.

The obituary page…so impersonal. Facts: names, dates, places, times. Nothing, yet supposedly everything. How can Mom be a statistic in black and white to them, her whole life listed in capsule form? Yet they know nothing of her, nothing at all.

Mom. Quitting school at 16 in order to bring home money for the family. Falling in love with a sailor in his dress blues, marrying him at 18, and working at 41 years of life together. Two daughters, a business, long days. Always saving for a rainy day, postponing trips “until we are retired.”

Memories. A cool hand on my forehead whenever I had a fever (it comes full circle, Mom; I did the same for you at the end). My favorite meal. Unending words of encouragement and support. Holding my hand tightly whenever I crossed the road on my way to school. Sitting together on a swing under the tree, having morning coffee together. (I didn’t even like coffee, but I liked the time with you.) Going shopping and having lunch together. A blinding smile that lit up the Academy of Music: “My daughter, the Doctor.” Waking up in the hospital after all four of my surgeries, and seeing you at the bottom of the bed, waiting. Trips to Europe, and cruises with my own cabin. Christmas Eve, filled with Italian dinners and hours of opening presents.

Alex. The child against the odds, as I had been for you. My Alex, your third grandson, who you greeted every morning for 16 months as if he were a king. You showered him with the same love you had given me. Now, he asks who you are in family pictures. His beloved Mimi. He was barely 2 ½ when you left. How can I be a Mother to him, as you were to me, when you’re not here to guide me?

June, 1987. Cancer. Dr. Friedman’s office: lumpectomy or mastectomy? Point-blank: “Theresa, what would you do?” As if any of us can outsmart cancer. But I know better. I know how poor a woman’s chances really are. 1-800-4-CANCER. Very supportive, very optimistic, very wrong.

Chemotherapy. Six long months of pills and injections; you were node-positive. The cancer cells will die (so will you). Doesn’t chemotherapy kill the healthy cells, too? You told me losing your hair hurt more than the nausea and vomiting, and I believed you. The wig was rejected, a turban grudgingly accepted.

Change. You’re different, Mom. You’re giving up. You talk less, you care less, you take longer to heal. You’re too sick to tell jokes or have a beer or yell at Dad or give advice. I don’t know you, and I’m impatient because I want the real you back. I’m selfish, and I feel guilty for thinking you should be better.

Super Bowl Sunday, January, 1988. I am depressed. You’re too sick to come to the annual party (you started this tradition, Mom; you have to be here!). The doorbell rings, and you’re at my front door in a long, navy blue bathrobe, turban on your head, bedroom slippers, and your stomach swollen like when I was 9 months pregnant. But you’re here, and my smile lights up the foyer (you always said I was pretty when I smiled). Later, I realized that my house was the last place you would visit before your final trip to the hospital.

February 1, 1988. The first day of the last month of your life. First, removal of several liters of fluid from your stomach, then surgery to implant a porta-cath, followed shortly by exploratory surgery. “Did it turn out all right, Theresa?” “Yes, Mom, it’s okay.” Really? No. Half of your liver is gone, the cancer is strangling your intestines, spreading throughout your body cavity. Six months of chemotherapy. For what? To make the time you had left more miserable?

Roller coaster. The doctors have elected me as the family spokesperson, the person to hear the news and disseminate it to the rest. I cringe every time I turn the corner in the hallway of the hospital, and hear the latest test results. Where there’s life, there’s hope, daughter Theresa says. Mom’s spirit will beat this. But Dr. Theresa knows there’s no chance of recovery. A constant battle; which person do I believe?

Warren Hospital. Your window on the 2nd floor…it’s easy to find from outside. It’s the one with hundreds of cards taped to the window and walls. Doris, the nurse’s aide who helps you sip iced tea, says she’s never seen this many cards for a patient. It’s the room with 29 days of non-stop flower arrangements, brightening those dreary February days, helping to mask the ever-present smell of cancer.

Flowers

Hospital furniture. Adjustable bed and wheelchair. IV tubes, blood transfusions, catheter, oxygen, stomach tube, intestinal feeding tube. A water mattress to cool your body temperature, a fan blowing on your elevated legs (blood clots, remember?). A washcloth on your forehead, Depend undergarments (full circle), hospital robes, blood pressure cuffs, electronic IVs. Beep, beep, beeping…STOP! I want to rip them all out, this is barbaric. I want to end your suffering (or is it mine?) with an overdose of morphine. I ask Dr. Friedman for extra morphine. “Theresa, you don’t know what you’re saying.” Or do you?

Doctor’s words of wisdom: your mother will not leave the hospital…I almost cried when I opened her up and saw the extent of her cancer…if only we could get back some of her spirit, she might have a fighting chance…it would be merciful if a blood clot loosened; it would be quick…should we write a “Do Not Resuscitate” order?…you may have to make the decision to stop feeding her (starve her???)…give her as much morphine as she wants…there are good ways and bad ways to die, and your mother has shown more courage and dignity in her death than I’ve ever seen…I’m sorry, I wish there was more that I could do.

You knew, didn’t you, Mom? You told the nurses you didn’t want this to take too long, that your family was suffering too much. At your request, a priest administered Last Rites…we had no idea. “Are you mad at me, Theresa, for refusing more chemo?” “No, Mom, (choke) I’d do the same thing.” You told us where all of your jewelry was, and what clothes to have Dad wear at your viewing and funeral. You wanted to be in a pink or blue nightgown. Pink? I never saw you in pink. We got you blue, Mom, and the saleslady at Sigal’s offered her deepest sympathies.

Saturday, February 27th. It snowed, so Steve drove Alex and me. You were delirious, but you were coherent enough to want to see Alex. Yes. “Dee dee (your pet name for him).” Alex was afraid of you and the tubes, but your frightened look makes me keep him there awhile longer. You fought the morphine to stay awake, and wanted us all by the bed. Peach schnapps? Okay, Mom, we’ll make sure everyone is offered it at the house. You waited until we left to close your eyes, taking one last long look at your family. You slept peacefully, and Dad didn’t even try to wake you to say good-bye.

Sunday, February 28th. The hospital called us…were we coming? Of course; Dad hadn’t missed a day. The hospital bed was lowered (don’t the blood clots matter any more?) and someone had placed your rosary in your hand. Your breathing was ragged, the machines pumping and beeping, the flowers the only bright spot in the room. June, your favorite nurse, cried in my arms in the hall. She told me that this was how it ended. This is how it ends? All those years of joy and sorrow, hopes and dreams…they just stop? (Is this really happening? I’ll wake up from this nightmare soon, and everything will be all right.) They said hearing is the last sense to go, so I held your lavender rose close and said good-bye, thanking you, loving you, telling you it was all right for you to go. The nurses came at the end of their shift to say good-bye, forming a circle of love around your bed. You continued to touch people, Mom, even at your worst. If only they had known you at your best!

Monday morning, 3am. The phone call. Good. It is done. No more suffering. So many details and decisions, so many people with so many kind words and so much food. Steve makes the trip to the hospital to take down all of the cards. Your room was empty when he got there. The bed was stripped of you, as was my life.tear

Tuesday, the viewing. Wednesday, the funeral. Numbness. Would you believe we’re trying to comfort others in their grief? A woman kneeled with her head in my lap, her tears soaking my dress. (Or were they my tears? No matter.) It’s not really you in that casket, Mom. You’re in a far better place. We got you slippers because your feet were always cold, and I put on your glasses so you could see. The funeral director is amazed at the number of floral tributes; they circled the room many times. Soon, they would grace the rooms of those back in the hospital, and the nurse’s station as well. By Wednesday evening, all is over. My new life without you has just begun.

March, 1989. A year has passed one day at a time. My frequent bouts of grief have given way to less frequent bouts, but when they come, they are just as deep and painful. The thing I miss most is talking to you every day at lunch time (how long will it be before I no longer catch myself reaching for the phone to tell you something important?). This is all so unbelievable; you’re just away on vacation and you’ll be back again, soon. I still get angry when I see older couples holding hands, and I put up a Christmas tree even though I didn’t have the heart for it. I did it for Alex, and for you. I am his mother, as you were mine. That’s what mothers do. I couldn’t go into a Hallmark store at Mother’s Day; maybe someday I’ll be able to pass the cards without crying.

I miss you, Mom, as a mother, and as a friend. Everyone tells me that I’ve been elected to take your place. Silly people…no one can do that. But your memory lives on in my heart, and those parts of you I passed on to Alex will live on in his children, his children’s children, and beyond. Every time I make seafood on Christmas Eve, read a book you would have enjoyed, give Alex a hug, make potato pancakes for Dad, help someone in need, keep watch over the family, say a prayer of thanksgiving for you…at each of these times, I will celebrate the memory of your being.

I miss you, Mom. But if I look around, you are everywhere, in all things. And most of all, in me. You will be with me always, and I know from a deep, abiding faith that someday, we will be together again. Until then, I will remember you, and keep you alive in my heart. I will live as you would have wanted me to, and I will do my best to remember to treat people with dignity, honor, and truth, as you taught me.

Thank you, Mom, for my life.

Thank You, God, for my mother.

May You grant her everlasting peace.

cala liliesl

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She Who Hears the Cries of the World

Kuan YinShe occupies a space on my mantle, so that every time I sit in our family room, I can be reminded of one of the ways I see myself as a counselor.

Kuan Yin. In Buddhism, the Goddess of Mercy. The Bodhisattva (Being of Enlightenment) of Compassion. She who hears the cries of the world.

Originally, as an intern at Loyola University Maryland for their Pastoral Counseling Program, I earned hours toward my Master’s Degree at a loss and bereavement center. That meant working will terminally ill people to help prepare them for death, as well as being available to their family members after the loss of their loved ones. We saw people in their homes, in an oncology center, in nursing homes and/or in our offices.

One day at lunchtime, a female chaplain noticed that I was subdued and asked what was wrong. I didn’t even realize I looked any different. I told her that going into the nursing homes was particularly difficult for me, as so many of the people housed there, although alive, appeared to have already died, their beings diminished. In fact, the nurses would tell me that some nursing home guests had not had visitors in more than 10 years (yes – you read that right – 10 years). The musty smells, their feathery moans, the pleading for help, the anguished cries, the gloomy atmosphere – all left a weighty hopelessness in me long after I ended each visit.

The chaplain, understanding in her eyes, offered this: “Theresa, when you are in the nursing home, for the residents…you are their light.” She paused to make sure I heard. “You might be the only “outside” person they’ve seen in far too long. For them, in a day that’s no different than any other, you are their light.”

I’ve never forgotten that. You Are Their Light.

I’ve learned that many of us don’t look toward the light until we’re alone in the darkness. That light brings us hope, warmth, a reason to get up and move forward. It’s a beacon, a guide, a flame, a spark, an illumination.

Then a funny thing happens. A quote I keep on my desk reminds me that with each act of giving, there is always something good in return. “You cannot hold a torch to light another’s path without brightening your own.”

Smiling, being their light, helped me to shed light into my own dark and broken places.

Thank you, Chaplain Susan, for your wisdom and insight so long ago. I remember. In remembering, I, too am transformed.

“Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light.”
~ Albert Schweitzer

So I seek to bring light. To be a messenger. To be present. To be a co-journeyer. To hear their cries.

Kuan Yin. She Who Hears the Cries of the World.